Diabetes complications in youth - Qualitative analysis of parents' perspectives of family learning and knowledge
Diabetes complications in youth - Qualitative analysis of parents' perspectives of family learning and knowledge
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DOI：
10.2337/dc07-2349
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发表时间：
2008-08-01
期刊：
影响因子：
16.2
通讯作者：
Wysocki, Tim
中科院分区：
文献类型：
--
作者：
Buckloh, Lisa M.;Lochrie, Amanda S.;Wysocki, Tim
目的-青年1型糖尿病面临着长期的健康风险的疾病并发症。关于这些并发症，患者和父母的知识、信息获取和家庭沟通知之甚少。本文报告定性分析的父母焦点小组讨论本topic.RESEARCH设计和方法-共47名参与者（30名母亲，14名父亲，和3人），代表33名儿童年龄在8至18岁之间的I型糖尿病参加了我的13个焦点小组。开放式问题的重点是医疗保健专业人员在不同时间点向父母提供的有关长期并发症的信息的类型和数量，以及提供信息的方式。问题还引出了有关亲子沟通和接触的误解糖尿病complication.Results -转录焦点小组的定性分析显示，参与者经历了显着的焦虑糖尿病并发症，随着时间的推移，从关注日常管理任务的关注长期并发症的转变。参与者希望有一个灵活的，合作的教育方法，特别是关于信息的时间和类型，相对于孩子的年龄和糖尿病的持续时间。许多父母希望从医疗保健提供者那里得到更敏感的沟通和情感支持。激励儿童似乎是一个特殊的挑战，家庭倦怠与糖尿病护理随着时间的推移。知识是通过多种方式获得的，但错误的信息是uncomment.CONCLUSIONS -获得有关长期并发症的信息是一个重要的过程，改变了疾病的过程中，与孩子的发育水平。需要更多的研究，特别是关于年轻人对糖尿病并发症的知识，学习和信念。
OBJECTIVE - Youth with type 1 diabetes face long-term risks of health complications of the disease. Little is known about patients' and parents' knowledge, acquisition of information, and family communication regarding these complications. This paper reports qualitative analyses of parental focus-group discussions of this topic.RESEARCH DESIGN AND METHODS - A total of 47 participants (30 mothers, 14 fathers, and 3 others) representing 33 children between the ages of 8 and 18 years with type I diabetes participated in I of 13 focus groups. Open-ended questions focused on the type and amount of information about long-term complications presented to parents by health care professionals at different time points, as well as the way that information was presented. Questions also elicited details about parent-child communication and exposure to misconceptions about diabetes complications.RESULTS - Qualitative analysis of the transcribed focus groups revealed that participants experienced significant anxiety about diabetes complications, with a shift from concern about daily management tasks to concern about long-term complications over time. Participants desired a flexible, collaborative educational approach, especially regarding the timing and type of information, relative to the child's age and duration of diabetes. Many parents wanted more sensitive communication and emotional support from health care providers. Motivating children appeared to be a particular challenge, family burnout with regard to diabetes care Over time was reported. Knowledge was gained in many ways, yet misinformation was uncommon.CONCLUSIONS - Obtaining information about long-term complications is an important process that changes Over the course of the disease and with the child's developmental level. More research is needed, especially regarding youth knowledge, learning, and beliefs about diabetes complications.