Cancer survivorship practices, services, and delivery: a report from the Children's Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees.
Cancer survivorship practices, services, and delivery: a report from the Children's Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees.
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DOI：
10.1007/s11764-011-0192-8
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发表时间：
2011-12
期刊：
影响因子：
--
通讯作者：
Freyer DR
中科院分区：
文献类型：
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作者：
Eshelman-Kent D;Kinahan KE;Hobbie W;Landier W;Teal S;Friedman D;Nagarajan R;Freyer DR
为了描述儿童肿瘤学小组 (COG) 提供的生存服务，对服务进行了评估。我们的总体目标是 1) 描述幸存者服务，包括提供的服务范围、资源（人员、慈善事业、研究经费）、计费做法和护理障碍；2) 描述用于儿童癌症幸存者和成年儿童癌症幸存者的护理模式。 220 家 COG 机构中有 179 家（81%）完成了互联网调查。一百五十五人 (87%) 报告提供幸存者护理。 59% 的机构通过专门的后期效应计划为其儿科人群提供护理。对于成年幸存者，47% 的机构选择了护理模式，其中包括过渡到成人提供者提供基于风险的医疗保健，而 44% 的机构将幸存者无限期地留在治疗机构（基于癌症中心的模式，无需社区转诊）。 68% 的人向幸存者提供了幸存者护理计划 (SCP) 的副本。只有 31% 的机构在每次就诊后提供详细的结果摘要，41% 的机构拥有跟踪幸存者健康结果的数据库。初次就诊和每年就诊的幸存者护理预计分别至少需要 122 分钟和 91 分钟。最普遍的护理障碍是缺乏专门的时间来制定计划，以及接受过渡转诊的临床医生认为知识不足。并非所有 COG 机构都提供专门的幸存者护理、护理计划或拥有用于跟踪结果的数据库。 COG 内部正在向成人提供者过渡。幸存者护理非常耗时。
To describe survivorship services provided by the Children's Oncology Group (COG), an assessment of services was undertaken. Our overall aim was 1) to describe survivorship services, including the extent of services provided, resources (personnel, philanthropy, research funding), billing practices, and barriers to care and 2) to describe models of care that are in use for childhood cancer survivors and adult survivors of childhood cancer. 179 of 220 COG institutions (81%) completed an internet survey. One hundred fifty-five (87%) reported providing survivorship care. Fifty-nine percent of institutions provide care for their pediatric population in specialized late effects programs. For adult survivors, 47% of institutions chose models of care which included transitioning to adult providers for risk-based health care, while 44% of institutions keep survivors indefinitely at the treating institution (Cancer Center Based Model without Community Referral). Sixty-eight percent provide survivors with a copy of their survivorship care plan (SCP). Only 31% of institutions provide a detailed summary of results after each clinic visit, and 41% have a database to track survivor health outcomes. Survivorship care for initial and annual visits is estimated to be minimally 122 and 91 minutes respectively. The most prevalent barriers to care were the lack of dedicated time for program development and a perceived insufficient knowledge on the part of the clinician receiving the transition referral. Not all COG institutions provide dedicated survivorship care, care plans, or have databases for tracking outcomes. Transitioning to adult providers is occurring within the COG. Survivorship care is time-intensive.