A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care
A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care
复制标题
DOI：
10.1597/15-292
复制
发表时间：
2017-09-01
影响因子：
1.1
通讯作者：
Wong, Karen W.
中科院分区：
文献类型：
--
作者：
Allori, Alexander C.;Kelley, Thomas;Wong, Karen W.
护理唇裂和/或口感的患者保持复杂。缺乏数据标准，以前试图汇总数据以研究特定干预措施或整体治疗方案的有效性。迫切需要更好地定义对患者及其家庭最重要的结果，并标准化这些结果的方法。本报告总结了一个国际多学科工作组的建议，其中一个典型的裂口团队可以跟踪哪些结果，如何测量和记录这些结果以及可以采用哪些策略来可持续实施预期数据收集系统。只有同意对裂口护理全面评估的共同标准的结果指标，中心比较才能成为可能。这对于质量改善努力，比较有效性研究和基于价值的医疗保健改革很重要。
Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating data to study the effectiveness of specific interventions or overall treatment protocols have been hindered by a lack of data standards. There exists a critical need to better define the outcomes-particularly those that matter most to patients and their families- and to standardize the methods by which these outcomes will be measured. This report summarizes the recommendations of an international, multidisciplinary working group with regard to which outcomes a typical cleft team could track, how those outcomes could be measured and recorded, and what strategies may be employed to sustainably implement a system for prospective data collection. It is only by agreeing on a common, standard set of outcome measures for the comprehensive appraisal of cleft care that intercenter comparisons can become possible. This is important for quality-improvement endeavors, comparative effectiveness research, and value-based health-care reform.