A refresh of the top 10 research priorities in cystic fibrosis.
A refresh of the top 10 research priorities in cystic fibrosis.
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作者：
2018年，我们发布了詹姆斯林德联盟（JLA）囊性纤维化（CF）临床研究的十大优先事项，由患者和临床社区共同选择。这些优先事项导致了新的研究资金。为了确定新的调节剂疗法是否改变了优先事项，我们通过一系列调查和研讨会进行了在线国际更新。患者和临床医生（n=1417）从971个新的研究问题（由患者和临床医生建议）和2018年的15个问题中选择了更新后的前10名。我们正在与国际社会合作，根据这些更新的十大优先事项促进研究。
In 2018 we published the James Lind Alliance (JLA) top 10 priorities for clinical research in cystic fibrosis (CF), chosen jointly by the patient and clinical communities. These priorities have led to new research funding. To establish whether priorities have changed with novel modulator therapies, we undertook an online international update through a series of surveys and a workshop. Patients and clinicians (n=1417) chose the refreshed top 10 from 971 new research questions (suggested by patients and clinicians) and 15 questions from 2018. We are working with the international community to promote research based on these refreshed top 10 priorities.
影响因子：
9.6
作者：
Burgel, Pierre-Regis;Burnet, Esperie;Martin, Clemence
通讯作者：
Martin, Clemence
影响因子：
5.2
作者：
Ng, Christabella;Dellschaft, Neele S.;Smyth, Alan R.
通讯作者：
Smyth, Alan R.