Credible, centralized, safe, and stigma-free: What youth with bipolar disorder want when seeking health information online
Credible, centralized, safe, and stigma-free: What youth with bipolar disorder want when seeking health information online
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可信、集中、安全、无耻辱：双相情感障碍青年在网上寻求健康信息时想要什么
DOI：
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发表时间：
2016
期刊：
影响因子：
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通讯作者：
E. Michalak
中科院分区：
文献类型：
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作者：
Kirsten Noack;Nusha Balram Elliott;Eugenia Canas;K. Lane;Andrea Paquette;Jane Lavigne;E. Michalak
目的：双相青年行动项目（BYAP）是一项为期两年的青年驱动研究。我们的研究探讨了：1)对温哥华岛患有双相情感障碍（BD）的青年有效的自我管理策略，以及2)青年参与者倾向于与他们的社区和支持圈分享这些策略的方法。方法：该研究采用了一组七名患有双相障碍的青年行动小组（YAG）成员，在基于社区的参与式研究（CBPR）框架下与研究团队合作。通过合作，我们设计并执行了两个温哥华岛研究论坛，邀请来自更广泛社区的BD青年分享他们关于自我管理的知识。采用了定性（焦点小组）、咨询（世界咖啡馆）和基于艺术（图形化促进）的方法。在CBPR方向下对定性结果进行了专题分析。结果：29名青年双相障碍患者被招募到两个论坛。焦点小组的调查结果确定了五个主要主题，其中包括：“自我管理策略的来源”。一半的焦点小组参与者描述了他们如何使用在线资源来学习更多的自我管理或加强他们的社会支持网络。世界咖啡馆的磋商表明，虽然样本主要使用在线资源获取心理健康信息，但他们遇到了重大障碍，即耻辱和难以找到可信、安全和有证据的信息。结论：青年参与BD研究和知识交流是可行的。此外，患有双相障碍的年轻人显然有建设性和重要的见解可以分享，如果加以利用，将有助于研究界为后代开发适当、有效和安全的在线心理健康空间。（摘要字数：249/250）
Objective: The Bipolar Youth Action Project (BYAP) is a two-year, youth-driven study. Our research explored: 1) bipolar disorder (BD) self-management strategies that are effective for Vancouver Island youth living with BD, and 2) the methods preferred by youth participants for sharing these strategies with their communities and support circles. Methods: The study employed a group of seven Youth Action Group (YAG) members who live with BD to work with the research team in a Community-Based Participatory Research (CBPR) framework. In collaboration, we designed and executed two Vancouver Island-based Research Forums, inviting youth with BD from the wider community to share their knowledge about self-management. Qualitative (focus group), consultation (World Cafe), and arts-based (graphic facilitation) methods were utilized. Qualitative findings underwent thematic analysis within a CBPR orientation. Results: 29 youth participants with BD were recruited to the two Forums. Focus group findings identified five overarching themes, which included: ‘Sources of self-management strategies’. Half of the focus group participants described how they used online sources to either learn more about self-management or strengthen their social support networks. World Cafe consultations indicated that, while the sample primarily used online sources for mental health information, they experienced significant barriers, namely stigma and difficulty finding credible, safe, and evidence-informed information. Conclusion: Youth engagement in BD research and knowledge exchange is feasible. Moreover, youth with BD clearly have constructive and important insights to share which, if harnessed, will help the research community to develop appropriate, effective and safe online mental health spaces for future generations. (Abstract word count: 249/250)