Parents sharing information with their children about genetic conditions.
Parents sharing information with their children about genetic conditions.
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DOI：
10.1016/j.pedhc.2005.05.008
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发表时间：
2005-09-01
期刊：
影响因子：
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通讯作者：
Smith, Carrol
中科院分区：
文献类型：
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作者：
Gallo, Agatha M;Angst, Denise;Smith, Carrol
简介：护士是一个理想的情况，以帮助家庭与他们的孩子分享有关遗传条件的信息。虽然许多因素有助于这一决策，但很少有人知道父母如何决定何时以及如何将这些信息传达给他们的孩子。这种定性分析的目的是检查父母的信念和策略有关的遗传条件与他们的影响和未受影响的children.METHOD：一百三十九名父母参加了这项研究。结果：父母的信息分享方式和策略是以促进儿童对遗传条件的适应为目标的。父母分享信息的基础上，他们对儿童的发展准备和兴趣的评估，并描述信息共享作为一个不断发展的过程，在整个childhood.Discussion：的方法和策略有助于了解与信息共享的过程与父母和他们的孩子之间，医疗保健专业人员和父母之间。
INTRODUCTION: Nurses are in an ideal situation to help families share information with their children about genetic conditions. While many factors contribute to this decision making, little is known about how parents decide when and how to convey this information to their children. The purpose of this qualitative analysis was to examine parents' beliefs and strategies related to sharing information about a genetic condition with their affected and unaffected children.METHOD: One hundred thirty-nine parents participated in this study. Narrative analysis and fundamental qualitative description were employed to identify approaches and strategies that parents used to share information with their children.RESULTS: Parents' information sharing approaches and strategies were grounded in the goal of promoting the child's adaptation to the genetic condition. Parents shared information based on their assessment of the child's developmental readiness and interest and described information sharing as an unfolding process that continued throughout childhood.DISCUSSION: The approaches and strategies contribute to understanding the processes associated with information sharing between parents and their children and between health care professionals and parents.