Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives.

Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives.
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DOI:
10.1002/trc2.12144
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发表时间:
2021
期刊:
Alzheimer's & dementia (New York, N. Y.)
影响因子:
--
通讯作者:
Ritchie CS
Ritchie CS
中科院分区:
其他
文献类型:
--
作者:
Bernstein Sideman A;Harrison KL;Garrett SB;Naasan G;Dementia Palliative Care Writing Group;Ritchie CS

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姑息治疗的重点是减轻严重疾病患者及其家属的痛苦并改善其生活质量。为了开发专业记忆护理诊所的姑息治疗干预措施,本研究描述了记忆护理提供者在解决痴呆症患者姑息治疗需求方面的观点。对专业记忆护理提供者进行定性访谈,然后由一个多学科研究小组进行专题分析。提供者的方法与姑息治疗的关键领域重叠。治疗痴呆症的独特方法包括详细了解痴呆症综合征、行为症状和照顾者负担。挑战被确定为与疾病进展、提供者水平因素、系统和文化问题相关。答复者确定了加强姑息治疗方法所需的培训。使用记忆护理团队来解决PLWD的姑息治疗需求有许多优势。然而,他们可能需要额外的知识和培训来加强他们的工作。
Palliative care focuses on reducing suffering and improving quality of life for individuals with serious illness and their families. In an effort to develop palliative care interventions for specialty memory care clinics, this study characterizes memory care providers’ perspectives on addressing palliative care needs of people living with dementia (PLWD). Qualitative interviews with specialty memory care providers were followed by thematic analysis by a multidisciplinary research team. Provider approaches overlap with key domains of palliative care. Approaches unique to dementia include having a detailed understanding of dementia syndromes, behavioral symptoms, and caregiver burden. Challenges were identified related to disease progression, provider‐level factors, and systems and cultural issues. Respondents identified training needed to strengthen a palliative care approach. There are many strengths of using memory care teams to address palliative care needs of PLWD. However, they may require additional knowledge and training to strengthen their work.
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