Perceptions of cancer-related information among cancer survivors - A report from the American Cancer Society's studies of cancer survivors
Perceptions of cancer-related information among cancer survivors - A report from the American Cancer Society's studies of cancer survivors
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DOI：
10.1002/cncr.23713
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发表时间：
2008-09-15
期刊：
影响因子：
6.2
通讯作者：
Ayanian, John Z.
中科院分区：
文献类型：
--
作者：
MeInnes, D. Keith;Cleary, Paul D.;Ayanian, John Z.
背景。癌症相关信息的来源正在迅速增加，但对癌症幸存者可获得的健康信息是否满足他们的需求知之甚少。作者调查了778名马萨诸塞州癌症幸存者，他们在诊断出6种常见癌症后的3年、6年或11年。他们分析了他们对5种癌症相关信息的看法，这些信息的质量，获取这些信息的障碍，他们与提供癌症治疗的医生的经历，以及癌症治疗的质量。在462名（61%）报告需要癌症信息的受访者中，许多人对癌症支持团体（38%）、长期副作用（36%）、其他癌症患者的经历（26%）和癌症医生（26%）的癌症信息质量给出了不满意的评价（一般或较差）。约20%的受访者报告有时在获取癌症信息方面遇到障碍，尽管通常或总是遇到障碍的不到10%。对于男性和女性来说，较差的身体和精神功能与更大的信息需求、更差的信息质量评级和更多的获取信息障碍相关（均P < 0.01）。黑人或收入较低的癌症幸存者报告在获取所需信息方面存在更多问题，年轻女性比老年女性有更大的信息需求（均P < 0.01）。存在着改善癌症相关信息的双重性、内容和向幸存者提供信息的机会，特别是对那些种族/少数民族、低收入或身体或精神健康状况较差的幸存者。更有效地向癌症幸存者提供信息可以改善他们的护理和健康结果。
BACKGROUND. Sources of cancer-related information are rapidly increasing, but little is known about whether the health information available to cancer survivors meets their needs.METHODS. The authors surveyed 778 Massachusetts cancer survivors 3, 6, or 11 years after their diagnosis for 6 common cancers. They analyzed their views about 5 types of cancer-related information, the quality of that information, barriers to getting it, their experiences with physicians providing cancer care, and the quality of their cancer care.RESULTS. Among 462 (61%) respondents who reported needing cancer information, many gave unfavorable ratings (fair or poor) of the quality of cancer information regarding cancer support groups (38%), long-term side effects (36%), experiences of other cancer patients (26%), and cancer physicians (26%). About 20% of respondents reported sometimes experiencing barriers to obtaining cancer information, although fewer than 10% usually or always experienced barriers. For both men and women, worse physical and mental functioning was associated with greater need for information, worse ratings of information quality, and more barriers to obtaining information (all P < .01). Cancer survivors who were black or had lower incomes reported more problems obtaining needed information, and Younger women had greater information needs than older women (all P < .01).CONCLUSIONS. Opportunities exist to improve the duality, content and delivery of cancer-related information to survivors, especially for those who are racial/ethnic minorities, have low incomes, or are in worse physical or mental health. Providing information more effectively to cancer survivors may improve their care and health outcomes.