Acceptability of an mHealth Family Self-management Intervention (myFAMI) for Pediatric Transplantation Families: Qualitative Focus.
Acceptability of an mHealth Family Self-management Intervention (myFAMI) for Pediatric Transplantation Families: Qualitative Focus.
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DOI：
10.2196/39263
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发表时间：
2022-07-15
期刊：
影响因子：
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通讯作者：
Schiffman, Rachel
中科院分区：
文献类型：
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作者：
Lerret, Stacee Marie;Flynn, Erin;White-Traut, Rosemary;Alonso, Estella;Mavis, Alisha M;Jensen, M Kyle;Peterson, Caitlin G;Schiffman, Rachel
2021年，大约进行了1800例儿科移植，约占美国实体器官移植年率的5%。在从医院到家庭康复的过渡中，有效的家庭自我管理促进了移植的成功。使用mHealth提供自我管理干预是一种战略，可用于支持移植受者及其家人的家庭自我管理。这项研究旨在评估mHealth干预(MyFAMI)的可接受性，该干预将智能手机应用程序的使用与触发的护士与儿科移植接受者的家人沟通结合在一起。这是在一项更大的随机对照试验中，对接受myFAMI干预的家庭成员的定性数据进行的二次分析。符合条件的参与者在出院后30天内使用该应用程序，并参加了出院后30天的电话面试。内容分析被用来生成主题。总共确定了4个关键主题：(1)普遍接受，(2)积极互动，(3)出院后的家庭管理，以及(4)改善的机会。干预的可接受性很高。家庭成员认为这款智能手机应用程序很容易使用。MyFAMI让家庭有机会在家中感受到与医疗队的联系和参与。家庭成员重视和赞赏持续不断的支持和教育，特别是在他们的孩子出院后的头30天，许多人认为这对管理他们孩子在家中的医疗需求做出了积极贡献。家庭成员为这款应用的未来改进提供了建议，一些人表示，更长的跟踪期将是有益的。移动医疗保健提供策略的发展和完善具有改善实体器官移植患者及其家人的预后的潜力，并可作为其他慢性病人群考虑的模式。ClinicalTrials.gov NCT03533049；https://clinicaltrials.gov/ct2/show/NCT03533049
Around 1800 pediatric transplantations were performed in 2021, which is approximately 5% of the annual rate of solid organ transplantations carried out in the United States. Effective family self-management in the transition from hospital to home-based recovery promotes successful outcomes of transplantation. The use of mHealth to deliver self-management interventions is a strategy that can be used to support family self-management for transplantation recipients and their families. The study aims to evaluate the acceptability of an mHealth intervention (myFAMI) that combined use of a smartphone app with triggered nurse communication with family members of pediatric transplantation recipients. This is a secondary analysis of qualitative data from family members who received the myFAMI intervention within a larger randomized controlled trial. Eligible participants used the app in the 30-day time frame after discharge and participated in a 30-day postdischarge telephone interview. Content analysis was used to generate themes. A total of 4 key themes were identified: (1) general acceptance, (2) positive interactions, (3) home management after hospital discharge, and (4) opportunities for improvement. Acceptability of the intervention was high. Family members rated the smartphone application as easy to use. myFAMI allowed the opportunity for families to feel connected to and engage with the medical team while in their home environment. Family members valued and appreciated ongoing support and education specifically in this first 30 days after their child’s hospital discharge and many felt it contributed positively to the management of their child’s medical needs at home. Family members provided recommendations for future refinement of the app and some suggested that a longer follow-up period would be beneficial. The development and refinement of mHealth care delivery strategies hold potential for improving outcomes for solid organ transplantation patients and their families and as a model to consider in other chronic illness populations. ClinicalTrials.gov NCT03533049; https://clinicaltrials.gov/ct2/show/NCT03533049