Work, living, and the pursuit of happiness: Vocational and psychosocial outcomes for young adults with autism.

Work, living, and the pursuit of happiness: Vocational and psychosocial outcomes for young adults with autism.
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DOI:
10.1177/1362361320919246
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发表时间:
2020-10
期刊:
Autism : the international journal of research and practice
影响因子:
--
通讯作者:
Pickles A
Pickles A
中科院分区:
其他
文献类型:
--
作者:
Lord C;McCauley JB;Pepa LA;Huerta M;Pickles A

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关于可能患有自闭症的成人在儿童时期的功能的纵向数据很少,可能与成人临床转诊的数据集不同。123名儿童早期神经发育障碍的年轻人,平均年龄26岁,被分为三个结果组:ASD诊断时当前智商≥70 (Ever ASD-高智商),曾经ASD和当前智商<70 (Ever ASD-低智商)和从未接受过ASD诊断的个体(never ASD)。通过直接测试、问卷调查和访谈来评估独立性和幸福感。除了智力残疾之外,语言智商也解释了就业方面的群体差异;自闭特征(ADOS CSS)与适应技能和友谊有独特的关系。在许多方面,与ASD组相比,Never ASD组的结果相似。然而,较低的幸福感和较少的积极情绪与整个智商的ASD诊断有关。智商越低的组易怒、多动和服药的程度最高。在所有智力水平上,家庭在支持有或没有自闭症谱系障碍的成年人方面发挥了重要作用。应该通过与成年人及其家庭合作,制定提高独立性的现实方法,同时承认在精神健康、智力和自闭症症状方面的个体差异对神经发育障碍的影响。
Longitudinal data on the functioning of adults referred for possible autism as children is sparse and possibly different from datasets consisting of adult clinical referrals. 123 young adults, mean age of 26, referred for neurodevelopmental disorders in early childhood were categorized into three outcome groups: ASD diagnosis at some point and current IQ≥70 (Ever ASD-Higher IQ), ever ASD and current IQ<70 (Ever ASD-Lower IQ) and individuals who never received an ASD diagnosis (Never ASD). Independence and well-being were assessed through direct testing, questionnaires and interviews. Verbal IQ, beyond intellectual disability status, accounted for group differences in employment; autistic features (ADOS CSS) were uniquely related to adaptive skills and friendships. In many ways, the Never ASD group had similar outcomes compared to the ASD groups. However, lower well-being and fewer positive emotions were related to ASD diagnosis across IQ. The Ever ASD-Lower IQ group had the highest levels of irritability, hyperactivity, and medications. Families played a major role in supporting adults with and without ASD at all intellectual levels. Realistic ways of increasing independence should be developed through working with adults and their families, while acknowledging the contribution of individual differences in mental health, intelligence and autism symptoms across neurodevelopmental disorders.
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