Evaluation of the Validity and Reliability of the Alzheimer Disease-related Quality of Life Assessment Instrument
Evaluation of the Validity and Reliability of the Alzheimer Disease-related Quality of Life Assessment Instrument
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DOI：
10.1097/wad.0b013e31819b02bc
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发表时间：
2009-07-01
影响因子：
2.1
通讯作者：
Rabins, Peter V.
中科院分区：
文献类型：
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作者：
Kasper, Judith D.;Black, Betty S.;Rabins, Peter V.
阿尔茨海默病相关生活质量（ADRQL）工具的开发是为了使用家庭护理人员或专业人员的评估来评估AD患者的健康相关生活质量。ADRQL的有效性和可靠性，在其原始形式和修订版进行了评估，在它的样本组成的人在3个住宅环境（社区，辅助生活，疗养院）。ADRQL具有良好的项目内部一致性（67.5%的项目符合0.40标准）;项目与假设量表高度相关（85%的项目符合5个分量表中的4个和整体仪器的标准）;评分范围良好（总样本修订后的仪器为21.6 - 100）;缺失数据极低;内部一致性信度系数超过组间比较的最低信度标准（总分为0.86，分量表范围为0.56 ~ 0.83）。在社区样本中，ADRQL区分群体，并随着时间的推移在假设的方向上做出反应。照顾者评分者（社区样本）的特征，包括人口统计学和自测健康在很大程度上与分数无关。结果支持使用ADRQL来评估不同护理环境和疾病不同阶段的AD患者的健康相关生活质量。与认知和功能残疾水平的适度相关性表明，ADRQL提供了对痴呆症患者生活经历的其他重要方面的见解。修订版改进了测量性能，建议使用原始版本。
The Alzheimer Disease-related Quality of Life (ADRQL) instrument was developed to assess health-related quality of life in people with AD using assessments from family caregivers or professional staff. Validity and reliability of the ADRQL in its original form and a revised version are assessed in it sample consisting of persons in 3 residential settings (community, assisted living, nursing home). The ADRQL exhibits good item-internal consistency (67.5% of items met 0.40 standard); high correlation of items to hypothesized scales (85% of items met criteria for 4 of 5 subscales and the overall instrument); a good range of scores (21.6 to 100 for total sample revised instrument); very low missing data; and internal-consistency reliability coefficients exceeding the minimum reliability standard for group comparisons (0.86 for total scores; range of 0.56 to 0.83 for subscales). In a community sample, the ADRQL discriminates between groups and is responsive over time in hypothesized directions. Characteristics of caregiver raters (community sample) including demographics and self-rated health were largely unrelated to scores. The results Support the use of the ADRQL to evaluate health-related quality of life in persons with AD across various care settings and various stages of the disease. Modest correlations with cognitive and functional disability levels suggest that the ADRQL provides insight into other important dimensions of life experience in persons with dementia. The revised version has improved measurement properties and is recommended for use over the original.