Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy.

Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy.
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DOI:
10.1007/s10803-021-05346-5
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发表时间:
2023-04
影响因子:
3.9
通讯作者:
Stadnick, Nicole A.
Stadnick, Nicole A.
中科院分区:
心理学3区
文献类型:
--
作者:
Kim, Tierney;Martinez, Kassandra;Cruz, Breanna Lopez;Huang, Jeannie S.;Stadnick, Nicole A.

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对于患有自闭症(YASD)的青少年家庭来说,为侵入性医疗程序做准备的指导有限。这项研究考察了护理人员对YASD胃肠道内窥镜检查(GE)体验的看法,以改善YASD的胃肠内窥镜检查体验。34名YASD的照顾者(男性=9.85岁,SD=4.6)在2018年5月至2019年7月期间在圣地亚哥Rady儿童医院接受了GE(通过电子健康记录识别),他们参加了结构化的电话采访。护理人员报告说,由于程序团队对YASD的需求做出了反应,并适当地回答/解决了问题/关切,因此获得了积极的体验。护理人员报告需要有关如何为GE做准备的ASD特定信息。讨论了具体的建议。研究结果提供了改善YASD接受GE治疗的护理体验的策略。
Limited guidance is available for families of youth with ASD (YASD) to prepare for invasive medical procedures. This study examined caregiver perspectives regarding YASD’s gastrointestinal endoscopy (GE) experience to improve the endoscopy experience for YASD. Thirty-four caregivers of YASD, (M = 9.85 years, SD = 4.6) who underwent GE at Rady Children’s Hospital, San Diego between May 2018 and July 2019 (identified via electronic health record) participated in a structured phone interview. Caregivers reported a positive experience due to the procedural team’s responsiveness to the needs of YASD and appropriately answering/addressing questions/concerns. Caregivers reported a need for ASD-specific information on how to prepare for GE. Specific recommendations are discussed. Study findings offer strategies to improve the care experience of YASD undergoing GE.
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