Role strain and ease in decision-making to withdraw or withhold life support for elderly relatives.
Role strain and ease in decision-making to withdraw or withhold life support for elderly relatives.
复制标题
为老年亲属撤回或停止生命支持的决策中的角色紧张和轻松。
DOI：
10.1111/j.1547-5069.2004.04043.x
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发表时间：
2004
期刊：
影响因子：
--
通讯作者：
Stewart,BarbaraJ
中科院分区：
文献类型：
--
作者：
Hansen,Lissi;Archbold,PatriciaG;Stewart,BarbaraJ
目的：描述家庭照顾者在各种环境下做出撤回或停止对老年亲属生命支持的决定时所经历的角色紧张和角色满意度（分析后在决策中更名为轻松度）的概念。方法：对 17 名家庭照顾者进行半结构化访谈，以获取他们在为老年亲属做出生命支持决策时的经历描述。使用内容分析来分析数据。研究结果：角色紧张是复杂的、动态的、多维的，并且在生命支持决策之前、之中和之后随着时间的推移而演变。研究开始时使用的概念名称“角色满意度”与描述或家庭照顾者的经验不符，因此选择了修改后的名称“决策轻松度”。 结论：“角色紧张”和“决策轻松度”的概念此前尚未用于生命支持决策的研究。决策过程中的角色压力和轻松度都通过更全面地描述护理人员在做出生命支持决策过程中的反应，丰富了有关家庭护理中角色压力的现有文献。需要重点关注衡量决策中的压力和轻松程度的研究，以了解它们之间的相互关系以及它们与护理人员悲伤和健康等变量的关联。
Purpose: To describe the concepts of role strain and role satisfaction (renamed ease in decision‐making following analysis) experienced by family caregivers when making decisions to withdraw or withhold life support for elderly relatives in a variety of settings.Methods: Semi‐structured interviews were conducted with 17 family caregivers to obtain descriptions of their experiences when making decisions about life support for elderly relatives. Content analysis was used to analyze the data.Findings: Role strain was complex, dynamic, and multidimensional, and it evolved over time before, during, and after decision making about life support. Role satisfaction, the concept name used at the beginning of the study, did not match descriptions or the experience of family caregivers, and a revised name, ease in decision‐making, was selected.Conclusions: The concepts of role strain and ease in decision‐making have not previously been used in studies of decisions about life support. Both role strain and ease in decision‐making augment the existing literature on role strain in family care by providing a more complete picture of caregivers' responses during their experience of making life‐support decisions. Research focused on the measurement of strain and ease in decision‐making is needed to understand their interrelationship as well as their association with such variables as caregiver grief and health.