Better Use of Data to improve parent Satisfaction (BUDS): protocol for a prospective before-and-after pilot study employing mixed methods to improve parent experience of neonatal care
Better Use of Data to improve parent Satisfaction (BUDS): protocol for a prospective before-and-after pilot study employing mixed methods to improve parent experience of neonatal care
复制标题
更好地利用数据提高家长满意度 (BUDS)：采用混合方法改善家长新生儿护理体验的前瞻性前后试点研究方案
作者：
S. Sakonidou;I. Andrzejewska;Sophia Kotzamanis;W. Carnegie;M. Nakubulwa;T. Woodcock;N. Modi;D. Bell;C. Gale
简介 生下需要新生儿护理的婴儿会带来压力和创伤。家长经常对临床信息的沟通表示不满。在英国，新生儿护理数据每天使用电子病历系统 (EPR) 记录，其中去识别化的数据形成国家新生儿研究数据库 (NNRD)。我们的目的是评估与家长共享新生儿 EPR 数据对家长报告的满意度、家长与员工互动、员工工作量和数据完整性的影响。方法 一项前瞻性、前后、混合方法研究。参与者是住院婴儿（最多 90 名）的父母以及英国伦敦三级新生儿重症监护病房的工作人员。该干预措施是由前新生儿父母、新生儿科医生和新生儿护士开发的：一种为父母提供的沟通工具，包括来自 EPR 数据的个性化、书面的每日婴儿更新。干预措施将在 6 周内向家长提供。计划-实施-研究-行动循环将为工具的迭代开发和改进提供信息。该工具的影响将通过经过验证的家长调查、员工调查、数据完整性衡量和访谈来衡量。分析 主要结果：家长对“临床信息沟通和参与护理”的满意度。次要结果：家长与员工的互动、员工工作量、数据完整性。基线调查数据将从干预前的临床服务评估中获得。基线数据完整性将源自 NNRD。在干预期间，将每两周进行一次调查，并每天评估数据完整性。我们将使用运行图和部分配对的统计测试来分析结果。家长和员工访谈将探讨信息交换和沟通工具的影响。讨论 本研究将评估父母共同设计的干预措施对新生儿护理中与父母沟通的影响以及常规记录的电子临床数据的完整性。更好地利用常规记录的临床数据可以提高家长满意度并提高此类数据的研究效用，从而有利于临床护理。道德与传播 经西米德兰兹-南伯明翰 REC (18/WM/0175) 审查和批准。注册号 ISRCTN62718241。
Introduction Having a baby that requires neonatal care is stressful and traumatic. Parents often report dissatisfaction with communication of clinical information. In the UK neonatal care data are recorded daily using electronic patient record systems (EPR), from which deidentified data form the National Neonatal Research Database (NNRD). We aim to evaluate the impact of sharing neonatal EPR data with parents, on parent-reported satisfaction, parent–staff interactions, staff workload and data completeness. Methods A prospective, before-and-after, mixed-method study. Participants are parents of inpatient babies (maximum 90) and staff in a tertiary neonatal intensive care unit, London, UK. The intervention was developed by former neonatal parents, neonatologists and neonatal nurses: a communication tool for parents comprising individualised, written, daily infant updates for parents, derived from EPR data. The intervention will be provided to parents over 6 weeks. Plan-Do-Study-Act cycles will inform the tool’s iterative development and improvement. The tool’s impact will be measured using a validated parent survey, staff survey, data completeness measures and interviews. Analysis Primary outcome: parent satisfaction ‘with communication of clinical information and involvement in care’. Secondary outcomes: parent–staff interactions, staff workload, data completeness. Baseline survey data will be obtained from clinical service evaluation preceding the intervention. Baseline data completeness will be derived from the NNRD. During the intervention, surveys will be administered biweekly and data completeness assessed daily. We will analyse outcomes using run charts and partially paired statistical tests. Parent and staff interviews will explore information exchange and the communication tool’s impact. Discussion This study will evaluate the impact of a parent co-designed intervention on communication with parents in neonatal care and the completeness of routinely recorded electronic clinical data. Better use of routinely recorded clinical data provides the opportunity to improve parent satisfaction and increase the research utility of such data, benefiting clinical care. Ethics and dissemination Reviewed and approved by the West Midlands—South Birmingham REC (18/WM/0175). Registration number ISRCTN62718241.
基于 EMR 的每日患者更新信对新生儿重症监护病房的沟通和家长参与的影响。
影响因子：
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作者：
Palma,JonathanP;Keller,Heather;Godin,Margie;Wayman,Karen;Cohen,RonaldS;Rhine,WilliamD;Longhurst,ChristopherA
通讯作者：
Longhurst,ChristopherA