The Invisible Work of Being a Patient and Implications for Health Care: "[the doctor is] my business partner in the most important business in my life, staying alive"
The Invisible Work of Being a Patient and Implications for Health Care: "[the doctor is] my business partner in the most important business in my life, staying alive"
复制标题
作为病人的无形工作及其对医疗保健的影响：“[医生是]我一生中最重要的事业的商业伙伴，即保持生命”
DOI：
10.1111/j.1559-8918.2008.tb00093.x
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发表时间：
2008
期刊：
影响因子：
--
通讯作者：
Pratt,Wanda
中科院分区：
文献类型：
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作者：
Unruh,KentonT;Pratt,Wanda
在分布式护理系统中，患者在许多临床医生之间流动，并且大部分时间都在远离治疗中心的地方度过。尽管我们看到患者工作的结果（例如，服药、到达预约），但我们看不到工作本身。由于未能看到这项工作，行业忽视了对其业务具有重大影响的问题。为了揭开患者工作的隐形面纱，我们进行了一项纵向实地研究，以揭示乳腺癌患者为获取信息、桥接机构间护理、管理依赖性和解决不一致的建议所做的隐形工作。在本文中，我们提供了这项工作的详细示例，并探讨了对患者和医疗保健运营的影响；确定对以患者为中心的研究和设计具有影响的工作模式；并提出公共信息空间，通过突出依赖性、保留状态信息、将建议与理由联系起来以及跟踪任务进度的设计来改善患者的工作。
In a distributed system of care, patients shuffle among many clinicians and spend the majority of their time away from the treatment center. Although we see the results of patients' work (e.g., medication taken, arrived at appointment) we do not see the work itself. By failing to see this work, industry overlooks issues with vital implications for their business. To lift the veil of invisibility from patients' work, we conducted a longitudinal field study to uncover the invisible work breast cancer patients do to obtain information, bridge interinstitutional care, manage dependencies and resolve inconsistent recommendations. In this paper we provide detailed examples of this work and explore the impact on patients and health‐care operations; identify patterns of work with implications for patient‐centered research and design; and propose common information spaces to improve patients' work through designs that highlight dependencies, preserve state information, link recommendations to justifications, and track task progress.