Secret pills: HIV-positive patients' experiences taking antiretroviral therapy in North Carolina

Secret pills: HIV-positive patients' experiences taking antiretroviral therapy in North Carolina
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DOI:
10.1521/aeap.14.5.318.23870
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发表时间:
2002-08-01
影响因子:
1.8
通讯作者:
Eng, E
Eng, E
中科院分区:
医学4区
文献类型:
--
作者:
Golin, C;Isasi, F;Eng, E

文献摘要

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了解坚持抗逆转录病毒治疗的障碍是提高艾滋病毒治疗效果和拯救生命的关键步骤。我们试图从质量上评估北卡罗来纳州接受抗逆转录病毒治疗(ART)的HIV阳性者的经历。24人参加了六个重点小组之一。结构化面试脚本包括三个问题(两个开放式)和八个探测器。每一次讨论都被录音、转录和内容分析。出现了三个不同的主题。首先,许多参与者认为服用抗逆转录病毒疗法可以挽救生命,但他们错过了剂量,因为他们担心在公共场合服用这些药物会暴露他们的艾滋病毒状况。其次,结果是,参与者往往发现很难将他们的方案融入最基本的日常活动。最后,与会者强调了与广泛的卫生保健工作者就其治疗计划和隐私需求进行公开、持续对话的重要性。多层面的、有针对性的干预措施可以帮助艾滋病毒感染者克服他们在接受抗逆转录病毒治疗时面临的耻辱和其他复杂障碍。
Understanding the barriers to antiretroviral adherence is a critical step in improving the effectiveness of HIV treatment and saving lives. We sought to assess, qualitatively, the experiences of HIV-positive persons taking antiretroviral therapy (ART) in North Carolina. Twenty-four people participated in one of six focus groups. A structured interview script included three questions (two open-ended) and eight probes. Each discussion was taped, transcribed, and content-analyzed. Three distinct themes emerged. First, many participants believed that taking ART was lifesaving but missed doses because they feared that taking them in public would reveal their HIV status. Second, as a result, participants often found it difficult to integrate their regimens into the most basic daily activities. Finally, participants stressed the importance of having open, ongoing dialogues about their treatment plans and privacy needs with a wide range of health care workers. Multidimensional, tailored interventions may help persons living with HIV overcome the stigma and other complex barriers they face in taking antiretroviral therapy.