Unmet Respite Needs of Children With Medical Technology Dependence
Unmet Respite Needs of Children With Medical Technology Dependence
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DOI：
10.1177/0009922819870251
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发表时间：
2019-10-01
影响因子：
1.6
通讯作者：
Peek, Monica E.
中科院分区：
文献类型：
--
作者：
Sobotka, Sarah A.;Lynch, Emma;Peek, Monica E.
患有医疗技术依赖（MTD）的儿童需要医疗器械来补偿重要的身体功能和大量护理。因此，他们需要不断的高级别监督。临时看护为看护者提供了一个暂时的休息时间，并与减轻压力有关;然而，往往存在障碍。该研究采用混合方法与全国调查的儿童有特殊的医疗保健需求（NS-CSHCN）和半结构化的访谈与全州护理协调员了解差距的喘息护理服务。59%需要临时护理的父母没有得到任何护理。年龄较大的MTD儿童的父母更有可能报告喘息需求。护理协调员描述说，家庭健康短缺造成了利用喘息护理的障碍，缺乏喘息护理可能导致再次入院。虽然喘息护理是支持MTD儿童家庭的重要资源，但很少提供，这可能会产生严重的后果。
Children with medical technology dependency (MTD) require a medical device to compensate for a vital body function and substantial nursing care. As such, they require constant high-level supervision. Respite care provides caregivers with a temporary break, and is associated with reduced stress; however, there are often barriers. The study utilizes mixed methodology with the National Survey of Children with Special Health Care Needs (NS-CSHCN) and semistructured interviews with state-wide care coordinators to understand the gap for respite care services. Fifty-nine percent of parents who needed respite care received none. Parents of older children with MTD were more likely to report respite needs. Care coordinators described that home health shortages created barriers to respite care utilization, and the lack of respite care can lead to hospital readmission. Although respite care is a vital resource to support families of children with MTD, it is infrequently available, which can have severe consequences.