Readiness among people with epilepsy to carry body-worn monitor devices in everyday life: A qualitative study
Readiness among people with epilepsy to carry body-worn monitor devices in everyday life: A qualitative study
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DOI：
10.1016/j.yebeh.2020.107390
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发表时间：
2020-11-01
影响因子：
2.6
通讯作者：
Kjaer, Troels W.
中科院分区：
文献类型：
--
作者：
Beck, Malene;Simony, Charlotte;Kjaer, Troels W.
目的：设计和开发用于癫痫发作检测的新的可穿戴技术已经得到了广泛的努力。几项研究都集中在技术方面，但准备癫痫患者（PWES）在日常生活中使用可穿戴设备，这是至关重要的，仍然相对unexplored.Methods：我们进行了定性访谈研究，涉及八个PWES。该研究旨在提供洞察病人准备使用可穿戴设备的家庭监测epilepsy.Results：三个主题被确定：1）使无形的情况可见，2）在一个麻烦的日常生活中有陪伴，和3）分享所有权没有可识别的时刻。分析和解释表明，参与者对可穿戴设备的期望植根于对其生活和自我形象有重大影响的方面。癫痫患者透露，他们愿意在日常生活中使用技术，特别是可穿戴设备，这取决于他们会提供一种存在和舒适的体验，在这种情况下，他们个人需求的空白将以一种更有利于病人的方式得到解决。可穿戴设计应该考虑这样一个有价值的见解，即技术应该不仅仅是监测症状的技术工具;可穿戴设备应该是存在的和美学的人工制品，为PWE提供有意义的体验。(C)2020爱思唯尔公司All rights reserved.
Objective: There have been intensive efforts to design and develop new wearable technology for epileptic seizure detection. Several studies have focused on the technical aspects, but the readiness of patients with epilepsy (PWEs) to use wearables in everyday life, which is crucial, remains relatively unexplored.Methods: We conducted a qualitative interview study involving eight PWEs. The study was designed to provide insights into patient readiness to use wearables for home monitoring of epilepsy.Results: Three themes were identified: 1) making invisible situations visible, 2) having companionship within a troubled everyday life, and 3) sharing ownership of no recognizable moments. The analysis and interpretation revealed that the expectations of the participants for wearables were rooted in aspects that had a significant impact on their lives and self-image.Conclusion: Patients with epilepsy disclosed that their readiness to use technology, specifically wearables, in everyday life relied on the assumption that they would provide an existential and comforting experience, in which the voids of their individual needs would be addressed in a more patient-friendly manner. Wearable design should consider the valuable insight that technology should be more than just technical tools that monitor symptoms; wearables are expected to be existential and esthetic artifacts that provide PWEs with meaningful experience. (C) 2020 Elsevier Inc. All rights reserved.