Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps
Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps
复制标题
DOI：
10.3322/caac.21347
复制
发表时间：
2016-09-01
影响因子：
254.7
通讯作者：
Wolfe, Joanne
中科院分区：
文献类型：
--
作者：
Kirch, Rebecca;Reaman, Gregory;Wolfe, Joanne
本文重点介绍了2015年3月由医学研究所（IOM）和美国癌症协会联合举办的儿童及其家庭综合癌症护理研讨会的主要发现。该倡议召集了100多名家庭成员，临床研究人员，倡导者和公众成员，讨论新出现的证据和护理模式，并确定在儿科癌症治疗期间，治疗完成后以及整个生命周期中优化儿童和家庭生活质量结果和福祉的下一步措施。与会者肯定了儿科肿瘤学的三重目标，即努力治愈每一位癌症儿童;在整个病程和生存期内为儿童和家庭提供高质量的姑息治疗和心理社会支持，恢复和康复护理;并确保接受高质量的临终关怀。讲习班成果强调需要开发新的儿科癌症药物，并确定了优先考虑姑息治疗和心理社会支持的关键机会，将其作为儿科癌症研究和治疗的一个组成部分，包括必须为这些支持性服务提供充足的资源，以尽量减少痛苦和痛苦，有效解决儿童和家庭在疾病各个阶段的生活质量需求，并减轻与儿童癌症及其治疗相关的长期健康风险。接下来的步骤包括拆除现有的筒仓，加强临床研究人员，疾病导向专家和支持性护理服务之间的合作;扩大患者报告和家长报告结果的使用;有效地整合姑息治疗和心理社会护理;和临床沟通技能的发展。CA Cancer J Clin 2016;66：398-407. (c)2016美国癌症协会
This article highlights key findings from the Comprehensive Cancer Care for Children and Their Families March 2015 joint workshop by the Institute of Medicine (IOM) and the American Cancer Society. This initiative convened more than 100 family members, clinician investigators, advocates, and members of the public to discuss emerging evidence and care models and to determine the next steps for optimizing quality-of-life outcomes and well-being for children and families during pediatric cancer treatment, after treatment completion, and across the life spectrum. Participants affirmed the triple aim of pediatric oncology that strives for every child with cancer to be cured; provides high-quality palliative and psychosocial supportive, restorative, and rehabilitative care to children and families throughout the illness course and survivorship; and assures receipt of high-quality end-of-life care for patients with advancing disease. Workshop outcomes emphasized the need for new pediatric cancer drug development and identified critical opportunities to prioritize palliative care and psychosocial support as an integral part of pediatric cancer research and treatment, including the necessity for adequately resourcing these supportive services to minimize suffering and distress, effectively address quality-of-life needs for children and families at all stages of illness, and mitigate the long-term health risks associated with childhood cancer and its treatment. Next steps include dismantling existing silos and enhancing collaboration between clinical investigators, disease-directed specialists, and supportive care services; expanding the use of patient-reported and parent-reported outcomes; effectively integrating palliative and psychosocial care; and clinical communication skills development. CA Cancer J Clin 2016;66:398-407. (c) 2016 American Cancer Society.