Parents' Reports of Patterns of Use and Exposure to Practices Associated with AAC Acceptance by Individuals with Angelman Syndrome
Parents' Reports of Patterns of Use and Exposure to Practices Associated with AAC Acceptance by Individuals with Angelman Syndrome
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DOI：
10.3109/07434618.2013.784804
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发表时间：
2013-06-01
影响因子：
2
通讯作者：
Calculator, Stephen N.
中科院分区：
文献类型：
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作者：
Calculator, Stephen N.
这项调查的主要目的是加深我们对天使综合征 (AS) 患者使用 AAC 与两种广泛基因型相关的了解：删除阳性 (DP) 和非删除 (ND)。之前的研究人员表明，没有缺失的个体通常比 DP 的同龄人表现出更强的认知和沟通能力。这项调查重点关注 AAC 使用的几个方面：使用的通信系统；接触、成功使用和接受电子 AAC 设备；以及接触与 AAC 接受相关的实践。结果表明，这两个群体都严重依赖独立的、非符号的交流方法，而 ND 群体更可能使用传统的、符号系统。虽然两组在接触一系列电子设备方面相似，但 DP 组似乎更有可能只接触 BIGmack (TM) 等低技术设备。有强有力的证据表明，两个群体都有能力利用高科技设备取得成功，并且在使用时间方面对设备的总体接受度。鉴于这两个群体对 AAC 接受相关实践的接触有限，这一点尤其值得注意。我们讨论了这些发现的临床意义以及未来的研究途径。
The primary purpose of this investigation was to enhance our understanding of AAC use by individuals with Angelman syndrome (AS) in relation to two broad genotypes: Deletion Positive (DP) and Non Deletion (ND). Previous investigators have suggested individuals without deletions typically exhibit stronger cognitive and communicative abilities than their DP counterparts. This investigation focused on several aspects of AAC use: communication systems used; exposure to, success with, and acceptance of electronic AAC devices; and exposure to practices associated with AAC acceptance. Results indicated that both groups rely heavily on unaided, nonsymbolic methods of communication, with the ND group more likely to use conventional, symbolic systems. While the two groups were similar with respect to exposure to an array of electronic devices, the DP group appeared more likely to have gone no further than low-tech devices such as the BIGmack (TM). There was strong evidence of both groups' capabilities for success with high-tech devices and overall acceptance of devices in terms of duration of use. This proved especially noteworthy in light of both groups' limited exposure to practices associated with AAC acceptance. Clinical implications of these findings are discussed along with future avenues of research.