Public Engagement through Inclusive Deliberation: The Human Genome International Commission and Citizens' Juries.
Public Engagement through Inclusive Deliberation: The Human Genome International Commission and Citizens' Juries.
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通过包容性审议进行公众参与：人类基因组国际委员会和公民评审团。
DOI：
10.1080/15265161.2022.2146786
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发表时间：
2023
期刊：
影响因子：
--
通讯作者：
Scheinerman,Naomi
中科院分区：
文献类型：
--
作者：
Scheinerman,Naomi
在本文中，我认真对待公众参与人类基因组编辑决策的呼吁，支持在定于2023年3月6日至8日举行的人类生殖细胞基因组编辑临床应用国际委员会下一次峰会上召集“公民陪审团”。这种制度上的修改承诺比标准的生物伦理参与机会（如评论期）更具包容性，审议性和影响力的参与形式，通过服务于规范和政治目的，为基因编辑提供道德指导。在审查2021年召开的澳大利亚公民基因组编辑陪审团的证据时，我认为公民陪审团应与管理机构合作，以保留专业知识的作用，同时确保公众的不同观点也被纳入其最终报告。首先，早期包容性使“人民”能够通过帮助确定资源的优先次序来掌握议程制定权。这也使得下游的审议活动，如呼吁全球公民大会，更有可能发生，对政策更有影响力。第二，陪审团的多元化构成保证了对委员会工作的实质性贡献。第三，公民陪审团可以帮助培养委员会的可信度。
In this paper, I take seriously calls for public engagement in human genome editing decision-making by endorsing the convening of a “Citizens Jury” in conjunction with the International Commission on the Clinical Use of Human Germline Genome Editing’s next summit scheduled for March 6–8, 2023. This institutional modification promises a more inclusive, deliberative, and impactful form of engagement than standard bioethics engagement opportunities, such as comment periods, by serving both normative and political purposes in the quest to offer moral guidance on gene editing. In examining evidence from the Australian Citizens’ Jury on Genome Editing convened in 2021, I argue that Citizens’ Juries should work in tandem with governing institutions to preserve the role of expertise while ensuring that the diverse views of the public are incorporated into their final reports as well. First, early inclusivity allows “the people” to hold agenda setting power through helping to set resource priorities. This also makes a downstream deliberative event, such as the called for Global Citizens’ Assembly, both more likely to occur and more influential on policy. Second, Jury’s diverse composition promises substantive contributions to the Commission’s work. Third, Citizens’ Juries could help to cultivate the Commission’s trustworthiness.
影响因子：
64.8
作者：
FREEDMAN, LP;LUISI, BF;YAMAMOTO, KR
通讯作者：
YAMAMOTO, KR
影响因子：
64.8
作者：
LUISI, BF;XU, WX;SIGLER, PB
通讯作者：
SIGLER, PB