Engaging African American breast cancer survivors in an intervention trial: culture, responsiveness and community.
Engaging African American breast cancer survivors in an intervention trial: culture, responsiveness and community.
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DOI：
10.1007/s11764-010-0150-x
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发表时间：
2011-03
期刊：
影响因子：
--
通讯作者：
Long DG
中科院分区：
文献类型：
--
作者：
Germino BB;Mishel MH;Alexander GR;Jenerette C;Blyler D;Baker C;Vines AI;Green M;Long DG
年轻的乳腺癌幸存者往往过着极其忙碌的生活，有着多重的要求和责任，这使得他们很难被招募到临床试验中。非洲裔美国妇女甚至更难招聘，因为更多的历史和文化障碍。在一项干预的随机临床试验中，我们成功地使用了文化上知情的、针对特定人群的招募和保留策略来吸引年轻的非洲裔美国乳腺癌幸存者。高加索人和非洲裔美国人乳腺癌幸存者从多个社区和地点招募。各种有计划的招募和保留策略解决了文化和人口特定的障碍，并以三个主要原则为指导：在感兴趣的社区中增加对研究的熟悉;增加研究信息和研究参与的可用性和可获得性;以及使用文化经纪人。年轻的非洲裔美国乳腺癌幸存者在11个月内增加了373%。当所有战略都到位并同时运作时，被招募的非洲裔美国妇女人数增长最快。白人和非裔美国妇女的保留率为87%。为了成功招募忙碌、年轻的非洲裔美国癌症幸存者，必须采用多方面的方法，解决参与研究的文化和种族/族裔障碍;弥合文化和社区之间的差距;在考虑参与研究时考虑信仰和信念的作用;认识到不同生命阶段和经济状况的要求以及研究在人们生活大局中的地位。征聘和留用的设计需要广泛地概念化并具体应用。对于忙碌的癌症幸存者，参与和完成研究参与的意愿是通过解决障碍，但也承认他们的时间，使研究熟悉，可用，可访问和可信的许多需求的战略增强。
Younger breast cancer survivors often lead extremely busy lives with multiple demands and responsibilities, making them difficult to recruit into clinical trials. African American women are even more difficult to recruit because of additional historical and cultural barriers. In a randomized clinical trial of an intervention, we successfully used culturally informed, population-specific recruitment and retention strategies to engage younger African-American breast cancer survivors. Caucasian and African American breast cancer survivors were recruited from multiple communities and sites. A variety of planned recruitment and retention strategies addressed cultural and population-specific barriers and were guided by three key principals: increasing familiarity with the study in the communities of interest; increasing the availability and accessibility of study information and study participation; and using cultural brokers. Accrual of younger African-American breast cancer survivors increased by 373% in 11 months. The steepest rise in the numbers of African-American women recruited came when all strategies were in place and operating simultaneously. Retention rates were 87% for both Caucasian and African American women. To successfully recruit busy, younger African American cancer survivors, it is important to use a multifaceted approach, addressing cultural and racial/ethnic barriers to research participation; bridging gaps across cultures and communities; including the role of faith and beliefs in considering research participation; recognizing the demands of different life stages and economic situations and the place of research in the larger picture of peoples’ lives. Designs for recruitment and retention need to be broadly conceptualized and specifically applied. For busy cancer survivors, willingness to participate in and complete research participation is enhanced by strategies that address barriers but also acknowledge the many demands on their time by making research familiar, available, accessible and credible.
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影响因子：
--
作者：
Corbie-Smith, G;Thomas, SB;St George, DMM
通讯作者：
St George, DMM
影响因子：
3.1
作者：
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通讯作者：
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影响因子：
3.2
作者：
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影响因子：
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作者：
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通讯作者：
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影响因子：
2.1
作者：
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通讯作者：
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