International reflections on caring for people with advanced dementia
International reflections on caring for people with advanced dementia
复制标题
国际上对照顾晚期痴呆症患者的思考
DOI：
10.1111/phn.12572
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发表时间：
2018
影响因子：
2.1
通讯作者：
Ogata Yasuko
中科院分区：
文献类型：
--
作者：
Yumoto Yoshie;Kernohan W. George;Morioka Noriko;Ogata Yasuko
痴呆症因其对受影响的个人、家庭、社会和国家经济的巨大影响而引起全球关注。随着疾病的进展，患者的需求在数量、深度和广度上不断增加，涵盖身体、心理、社会和精神领域。护理因地方、国家、东方和西方而异。为了学习其中的一些差异，我们探索了英国和日本的高级痴呆症护理。根据有关晚期痴呆症患者护理文献的概述，我们反思了对北爱尔兰和日本城市地区护理的直接非参与观察。虽然我们确定了解决痴呆症患者复杂需求的共同目标，但护理方法存在差异。总的来说，英国的痴呆症护理倾向于以人为本的护理，对作为姑息治疗方法一部分的预先护理计划有浓厚的兴趣。在日本，我们发现早期姑息治疗的证据较少，而更多的是基于家庭的决策来为老年人的护理提供信息。在这两个国家，痴呆症护理因地区而异，某些地区比其他地区更容易获得。国际知识交流和进一步的比较研究将有助于改善世界各地对晚期痴呆症患者的护理。
Dementia is causing global concern with its massive impacts on affected individuals, families, society, and national economies. As the disease progresses, patients’ needs increase in number, depth, and breadth, covering physical, psychological, social, and spiritual domains. Care varies from place to place, from country to country and from east to west. To learn from some of these variations, we explored advanced dementia care in United Kingdom and Japan. Informed by an overview of literature on care of people with advanced dementia, we reflected on direct nonparticipant observations of care in urban areas of Northern Ireland and Japan. While we identified a common purpose to address the complex needs of people living with dementia, there were differences in the approach to care. Broadly, dementia care in United Kingdom tends toward person‐centered care with a strong interest in Advance Care Planning as part of a palliative care approach. In Japan, we found less evidence of early stage palliative care and more of family‐based decision making to inform care of older people. In both countries, dementia care varies regionally, being more available in some areas than others. International knowledge exchange and further comparative studies will help to improve care for people with advanced dementia, everywhere.