Survivorship Care Plan Information Needs: Perspectives of Safety-Net Breast Cancer Patients
Survivorship Care Plan Information Needs: Perspectives of Safety-Net Breast Cancer Patients
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DOI：
10.1371/journal.pone.0168383
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发表时间：
2016-12-16
期刊：
影响因子：
3.7
通讯作者：
Joseph, Galen
中科院分区：
文献类型：
--
作者：
Burke, Nancy J.;Napoles, Tessa M.;Joseph, Galen
尽管医学研究所（IOM）2005年的建议，很少有护理组织制定了标准的生存护理计划（SCP）。健康素养低和英语水平低是SCP发展中需要考虑的重要因素。我们的研究旨在确定信息需求和生存护理计划的偏好低识字，多语种的患者，以支持从肿瘤学过渡到初级保健和正在进行的学习survivorship.MethodsWe进行了重点小组在五种语言与非洲裔美国人，拉丁裔，俄罗斯，菲律宾，白色，中国医学服务不足的乳腺癌患者。探讨的主题包括过渡到初级保健，获得信息，治疗史的知识，并对SCP.ResultsAnalysis的焦点小组数据的观点确定了三个主题：1）需要的信息和教育之间的过渡“积极治疗”和“生存”; 2）需要的信息（往往没有获得）从供应商;和3）SCP的内容和deliveration.ConclusionsOur数据点的观点，需要制定一个过程，以及书面信息的医疗服务不足的乳腺癌患者。SCP文件不会取代与提供者就治疗、症状管理和过渡进行的直接沟通，这是参与安全网的癌症患者在接受治疗时所缺乏的沟通。妇女转向同行的支持和社区为基础的组织，在没有信息从supplier.Implications癌症幸存者“明确和有效的”通信的生存照顾安全网的病人需要专门的工作人员培训，以解决广泛的信息需求和不确定性。
PurposeDespite the Institute of Medicine's (IOM) 2005 recommendation, few care organizations have instituted standard survivorship care plans (SCPs). Low health literacy and low English proficiency are important factors to consider in SCP development. Our study aimed to identify information needs and survivorship care plan preferences of low literacy, multi-lingual patients to support the transition from oncology to primary care and ongoing learning in survivorship.MethodsWe conducted focus groups in five languages with African American, Latina, Russian, Filipina, White, and Chinese medically underserved breast cancer patients. Topics explored included the transition to primary care, access to information, knowledge of treatment history, and perspectives on SCPs.ResultsAnalysis of focus group data identified three themes: 1) the need for information and education on the transition between "active treatment" and "survivorship"; 2) information needed (and often not obtained) from providers; and 3) perspectives on SCP content and delivery.ConclusionsOur data point to the need to develop a process as well as written information for medically underserved breast cancer patients. An SCP document will not replace direct communication with providers about treatment, symptom management and transition, a communication that is missing in participating safety-net patients' experiences of cancer care. Women turned to peer support and community-based organizations in the absence of information from providers.Implications for Cancer Survivors"Clear and effective" communication of survivorship care for safety-net patients requires dedicated staff trained to address wide-ranging information needs and uncertainties.