The future of mental health care: peer-to-peer support and social media.

The future of mental health care: peer-to-peer support and social media.
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DOI:
10.1017/s2045796015001067
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发表时间:
2016-04
影响因子:
8.1
通讯作者:
Bartels SJ
Bartels SJ
中科院分区:
医学1区
文献类型:
--
作者:
Naslund JA;Aschbrenner KA;Marsch LA;Bartels SJ

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患有严重精神疾病的人越来越多地转向流行的社交媒体,包括Facebook,Twitter或YouTube,以分享他们的疾病经历或向其他有类似健康状况的人寻求建议。这种新兴形式的主动沟通之间的自我形成的在线社区的患者和个人的不同健康问题被称为点对点的支持。我们提供了一个视角,探讨严重精神疾病患者之间的在线点对点联系如何促进这一群体的身心健康。在这篇评论中,我们的观点是,当一个患有严重精神疾病的人决定在网上与类似的人联系时,这代表了他们疾病经历中的一个关键点。我们提出了一个概念模型,以说明如何在线点对点连接可能会提供机会,为个人与严重的精神疾病,以挑战耻辱,增加消费者的激活和访问在线干预的精神和身体健康。患有严重精神疾病的人报告说,通过与同龄人在线互动,从更大的社会联系,群体归属感以及分享个人故事和应对精神疾病日常挑战的策略中获益。在网上社区,患有严重精神疾病的个人可以通过个人赋权和提供希望来挑战耻辱感。通过在线向同龄人学习,这些人可以深入了解重要的医疗保健决策,这可能会促进心理健康寻求行为。这些人还可以通过社交媒体获得心理和身体健康干预措施,这些干预措施可以包括同龄人之间的相互支持,有助于促进治疗参与并覆盖更广泛的人群。不可预见的风险可能包括接触误导性信息,面对他人的敌意或贬损性评论,或对自己的健康状况感到更加不确定。然而,鉴于迄今为止的证据,在线点对点支持的好处似乎超过了潜在的风险。未来的研究必须探索这些机会,通过在线同伴网络支持和授权严重精神疾病患者,同时仔细考虑在线同伴互动可能产生的潜在风险。还需要努力应对方法上的挑战,评估通过社交媒体提供的干预措施,并在线收集客观的身心健康结果衡量标准。一个关键的挑战将是确定从在线网络中的同龄人那里学到的技能是否转化为离线世界中恢复,就业或身心健康的有形和有意义的改善。
People with serious mental illness are increasingly turning to popular social media, including Facebook, Twitter or YouTube, to share their illness experiences or seek advice from others with similar health conditions. This emerging form of unsolicited communication among self-forming online communities of patients and individuals with diverse health concerns is referred to as peer-to-peer support. We offer a perspective on how online peer-to-peer connections among people with serious mental illness could advance efforts to promote mental and physical wellbeing in this group. In this commentary, we take the perspective that when an individual with serious mental illness decides to connect with similar others online it represents a critical point in their illness experience. We propose a conceptual model to illustrate how online peer-to-peer connections may afford opportunities for individuals with serious mental illness to challenge stigma, increase consumer activation and access online interventions for mental and physical well-being. People with serious mental illness report benefits from interacting with peers online from greater social connectedness, feelings of group belonging and by sharing personal stories and strategies for coping with day-to-day challenges of living with a mental illness. Within online communities, individuals with serious mental illness could challenge stigma through personal empowerment and providing hope. By learning from peers online, these individuals may gain insight about important health care decisions, which could promote mental health care seeking behaviours. These individuals could also access interventions for mental and physical wellbeing delivered through social media that could incorporate mutual support between peers, help promote treatment engagement and reach a wider demographic. Unforeseen risks may include exposure to misleading information, facing hostile or derogatory comments from others, or feeling more uncertain about one’s health condition. However, given the evidence to date, the benefits of online peer-to-peer support appear to outweigh the potential risks. Future research must explore these opportunities to support and empower people with serious mental illness through online peer networks while carefully considering potential risks that may arise from online peer-to-peer interactions. Efforts will also need to address methodological challenges in the form of evaluating interventions delivered through social media and collecting objective mental and physical health outcome measures online. A key challenge will be to determine whether skills learned from peers in online networks translate into tangible and meaningful improvements in recovery, employment, or mental and physical wellbeing in the offline world.