Dissatisfaction With Hospital Care for Children With Sickle Cell Disease Not Due Only to Race and Chronic Disease
Dissatisfaction With Hospital Care for Children With Sickle Cell Disease Not Due Only to Race and Chronic Disease
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DOI：
10.1002/pbc.22039
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发表时间：
2009-08-01
影响因子：
3.2
通讯作者：
Panepinto, Julie A.
中科院分区：
文献类型：
--
作者：
Brousseau, David C.;Mukonje, Terence;Panepinto, Julie A.
背景资料。之前的一项研究报告称，人们对患有镰状细胞病(SCD)的儿童的医院护理越来越不满意；然而，该研究规模较小，排除了种族和慢性病是否能解释这种差异的决定。程序。在出院时，患有SCD儿童的父母完成了一项调查，评估他们孩子对医院护理的满意度。将结果与三年来对哮喘儿童或接受普通儿科医生服务的满意度调查进行比较，以提高医院的质量。主要结果是父母报告了对护理的不满。用卡方检验比较SCD与各对照组的不满意程度。结果。研究对象包括639名儿童的父母，34名SCD儿童，124名哮喘儿童和481名普通儿科患者。与哮喘儿童(32.4%比16.9%，P<；0.05)和普通儿科患者(32.4%比14.6%，P<；0.05)相比，SCD儿童的父母对孩子的照顾更不满意。在所有儿童中，有少数族裔儿童的家庭的不满程度更高(21.1%比12.6%)；这种差异在哮喘儿童中不存在。在非裔美国儿童中，患有SCD儿童的父母认为他们的孩子因种族而受到不同待遇的比例高于哮喘儿童(45.5%比2.8%，P<；0.01)或普通儿科患者(45.5%比8.3%，P<；0.01)。结论。患有SCD儿童的父母报告说，他们对护理的不满增加了。虽然少数族裔家庭的不满程度更高，但在患有哮喘儿童的非裔美国家庭中，父母对种族问题的高度担忧并不是SCD儿童家庭的一个原因。儿科血癌2009；53：174-178。(C)2009年Wiley-Liss，Inc.
Background. A previous study reported increased dissatisfaction with hospital care for children with sickle cell disease (SCD); however, its small size excluded determining whether race and chronic disease explained the difference. Procedure. At hospital discharge, parents of children with SCD completed a Survey assessing satisfaction with their child's hospital care. Results were compared to three years of satisfaction surveys for children with asthma or admitted to a general pediatrician's service collected as quality improvement for the hospital. The primary outcome was parent reported dissatisfaction with care. A chi-square Was used to compare dissatisfaction between SCD and each comparison group. Results. Parents of 639 children were included, 34 children with SCD, 124 with asthma, and 481 general pediatric patients. Parents of children with SCD were more often dissatisfied with their child's care compared to children with asthma (32.4% vs. 16.9%, P < 0.05) and general pediatric patients (32.4% vs. 14.6%, P < 0.05). Among all children, dissatisfaction was higher in families with minority children (21.1% vs. 12.6%); this difference did not exist among children with asthma. Among African-American children, a higher proportion of parents of children with SCD believed their child was treated differently because of race than children with asthma (45.5% vs. 2.8%, P < 0.01) or general pediatric patients (45.5% vs. 8.3%, P < 0.01). Conclusion. Parents of children with SCD report increased dissatisfaction with care. While dissatisfaction was higher in minority families, the high rate of parental concern about race as a reason for families of children with SCD is not seen in African-American families of children with asthma. Pediatr Blood Cancer 2009;53:174-178. (C) 2009 Wiley-Liss, Inc.