Dimensions of stigmatization in patients with psoriasis in a 'Questionnaire on Experience with Skin Complaints'

Dimensions of stigmatization in patients with psoriasis in a 'Questionnaire on Experience with Skin Complaints'
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DOI:
10.1159/000246275
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发表时间:
1996-01-01
期刊:
影响因子:
3.4
通讯作者:
Lamprecht, F
Lamprecht, F
中科院分区:
医学3区
文献类型:
--
作者:
SchmidOtt, G;Jaeger, B;Lamprecht, F

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背景:污名化是银屑病患者的中心体验,具有广泛的心理和社会影响。目的:本研究的目的是通过皮肤投诉体验问卷(QES:Fragebogen zum Erlebon von Hautbeschwerden)来识别污名体验的维度。方法:对187例住院银屑病患者进行QES测试,QES是Ginsburg和Link提出的耻辱感问卷的德国扩展版。对问卷进行了因子分析,并对其结构效度进行了评价。结果:发现了5个因素:自尊、退缩、拒绝、沉着和掩饰。自尊、退缩和拒绝主要受银屑病影响的“问题区域”影响,拒绝主要受银屑病影响的“问题区域”影响,拒绝也受“看得见的部分”影响,退缩也受“看不见的区域”影响。年龄、发病年龄和性别对污名体验的影响很小,但有显著意义。结论:QES量表是区分银屑病患者耻辱经历的一种经济可靠的心理测量工具。
Background: Stigmatization is a central experience of patients with psoriasis with a broad psychic and social impact. Objective: The purpose of this study is to identify the dimensions of stigma experience by a Questionnaire on Experience with Skin Complaints (QES; 'Fragebogen zum Erlebon von Hautbeschwerden'). Methods: 187 in-patients with psoriasis were examined with the QES, an adopted and extended (German) version of the Feelings of Stigmatization Questionnaire by Ginsburg and Link. A factor analysis of the questionnaire was conducted and the construct validity was evaluated. Results: Five factors were found: 'self-esteem', 'retreat', 'rejection', 'composure' and 'concealment'. Self-esteem, retreat and rejection are mainly influenced by 'problematic regions' affected by psoriasis, rejection are mainly influenced by 'problematic regions' affected by psoriasis, rejection also by 'visible parts' and retreat also by 'invisible regions'. The influences of age, age at onset and sex on the stigma experience are small but significant. Conclusions: The QES proved to be an economical and reliable psychometric instrument to differentiate the stigma experience of psoriasis patients.