"I don't know what to do or where to go". experiences of accessing healthcare support from the perspectives of people living with Long Covid and healthcare professionals: A qualitative study in Bradford, UK.
"I don't know what to do or where to go". experiences of accessing healthcare support from the perspectives of people living with Long Covid and healthcare professionals: A qualitative study in Bradford, UK.
复制标题
“我不知道该做什么或去哪里”。
DOI：
10.1101/2022.08.04.22278204
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发表时间：
2022
期刊：
影响因子：
--
通讯作者：
Baz S
中科院分区：
文献类型：
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作者：
Baz S
背景 2022 年 10 月，据估计英国有 230 万人自我报告感染了长新冠病毒 (LC)。 许多人报告没有获得足够的医疗保健支持。目前缺乏对 LC 患者在获得医疗支持方面面临的障碍进行深入探讨的研究。了解这些障碍对于为 LC 患者提供更好的支持、护理和建议非常重要。目的了解 LC 患者在获得初级、二级和专科医疗保健支持时面临的障碍。设计和参与对布拉德福德的 LC 患者进行了 40 次访谈，同时对在布拉德福德医疗机构提供 LC 支持的医疗保健专业人员 (HCP) 进行了 12 次访谈。使用反思性主题分析对访谈进行分析。结果 LC 患者在获得 LC 支持的医疗服务方面存在很大困难。我们将参与者的医疗保健获取体验分为五种主要类型：(1) 无法获得初级保健；(2) 获得初级保健但获得（认为）支持不足；(3) 极度坚持；(4) 主流医疗保健的替代方案；(5) 积极的体验。严重缺乏专业信用证服务。少数族裔参与者面临着进一步的不信任障碍和对服务的恐惧，阻碍了他们获得支持。 HCP 讨论了提供服务的系统性障碍。经验融入了因大流行而进一步加剧的宏观结构问题。结论为了更好地支持 LC 患者，必须解决获得医疗支持所面临的障碍。重要的是，需要改善全科医生的准入；特别是因为全科医生是为 LC 患者提供支持的第一线。 患者和公众参与 患者和公众参与小组定期参与该项目。
BackgroundIn October 2022, it was estimated 2.3 million people in the United Kingdom have self‐reported Long Covid (LC). Many people have reported not receiving adequate healthcare support. There is a lack of research which provides an in‐depth exploration of the barriers faced by people with LC in accessing healthcare support. It is important to understand these barriers to provide better support, care and advice for those experiencing LC.ObjectiveTo understand the barriers faced in accessing primary, secondary and specialist healthcare support for people with LC.Design and Participation40 interviews were conducted with people living with LC in Bradford alongside 12 interviews with healthcare professionals (HCPs) providing LC support in Bradford healthcare settings. Interviews were analysed using reflexive thematic analysis.ResultsPeople living with LC had a large degree of difficulty in accessing healthcare services for LC support. We categorized the healthcare access experiences of participants into five main types: (1) being unable to access primary care, (2) accessing primary care but receiving (perceived) inadequate support, (3) extreme persistence, (4) alternatives to mainstream health care and (5) positive experiences. There was a severe lack of access to specialist LC services. Ethnic minority participants faced a further barrier of mistrust and fear of services deterring them from accessing support. HCPs discussed systemic barriers to delivering services. Experiences were embedded in macrostructural issues further exacerbated by the pandemic.ConclusionTo better support people with LC, the barriers faced in accessing healthcare support must be addressed. Of significance, improvements to general practitioner access are required; especially as GPs are the first line of support for people living with LC.Patient and Public InvolvementA patient and public involvement group is engaged at regular intervals in the project.