Challenges to and Lessons Learned from Conducting Palliative Care Research
Challenges to and Lessons Learned from Conducting Palliative Care Research
复制标题
DOI：
10.1016/j.jpainsymman.2008.03.014
复制
发表时间：
2009-03-01
影响因子：
4.7
通讯作者：
Bornemann, Tami
中科院分区：
文献类型：
--
作者：
O'Mara, Ann M.;Germain, Diane St.;Bornemann, Tami
为了响应美国国立卫生研究院2005年的募捐，16名研究人员获得了资金，以测试干预措施，这些干预措施将减少阻止癌症患者接受充分和适当的症状管理治疗的障碍。自颁奖以来，调查人员已经举行了两次会议，并确定了实施各自研究的一些挑战。进行了一项以石油为重点的调查。他们在雇用和保留研究人员、获得机构审查委员会批准、产生意外成本、增加参与者的挑战以及研究中使用的标准措施方面的经验。2006年底，每个项目的主要研究者在网上完成了调查，一年后，通过重新发送初始调查和电话随访，确认了初步结果。除了一位首席投资人外，所有人都完成了调查。获得机构审查委员会的批准，雇用和招募研究人员，建立分包合同，以及增加研究对象是研究者面临的主要挑战。这姑息治疗招标实现了超过其初衷，刺激研究，克服障碍，提供癌症症状管理，姑息治疗和临终关怀。从他们的项目中出现的挑战和问题中，受赠者能够确定具体的障碍和他们独特的解决方案，这可能有助于其他研究人员规划他们的研究计划。J Pain Symptom Manage 2009; 37：387-394. (C)2009年美国癌症疼痛缓解委员会。Elsever Inc.出版All rights reserved.
In response to a 2005 solicitation from the U.S. National Institutes of Health, 16 investigators received funding to test interventions that would reduce the barriers that prevent Cancer Patients from receiving adequate and appropriate symptom management therapies. Since the awards have been issued, the investigators have met two times and have identified a number of challenges to implementing their re respective studies. A survey was conducted that focused oil. their experiences with hiring and retaining study personnel, gaining Institutional Review Board approval, incurring unexpected costs, challenges to accruing participants, and a listin of standard measures used in hte study. The survey was complted online by the Principal Investigator for each project in late 2006 and the initioal results were confirmed one year later by resending the initial survey and by a follow-up telephone call. All but one Principal investgator completed the survey. Obaining Institutional Review Board approval, hiring and recruiting research personnel, establishing subcontracts, adn accruing research subjects were the primary challenges experienced by the investigators. This palliative care solicitation achieved more than its original intent of stimulating research in overcoming barriers to delivering cancer symptom management, palliative care and end-of-life care. From a surevy o the challenges and issues that emerged from their projects, grantees were able to identify specific hurdles and their unique solutions that may help other ivestigators as they plan their program of research. J Pain Symptom Manage 2009; 37 : 387-394. (C) 2009 U.S. Cancer Pain Relief Committee. Published Elsever Inc. All rights reserved.