STAR-Caregivers Virtual Training and Follow-up: a cultural adaptation for Latino caregivers of people with dementia.
STAR-Caregivers Virtual Training and Follow-up: a cultural adaptation for Latino caregivers of people with dementia.
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STAR-Caregivers 虚拟培训和随访：针对痴呆症患者的拉丁裔护理人员的文化适应。
DOI：
10.1093/tbm/ibad028
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发表时间：
2023
影响因子：
3.6
通讯作者：
Ornelas,IndiaJ
中科院分区：
文献类型：
--
作者：
Ramirez,Magaly;Duran,MirianaC;Penfold,RobertB;Pabiniak,ChesterJ;Hansen,KellyE;Ornelas,IndiaJ
STAR-Caregivers 虚拟培训和随访 (STAR-VTF) 是一种循证干预措施，教导家庭护理人员如何管理痴呆症的行为和心理症状。该研究的目的是确定需要对 STAR-VTF 进行哪些调整来提高拉丁裔护理人员的文化相关性。我们进行了一项定性研究，采访了自认为西班牙裔/拉丁裔的痴呆症患者的西班牙语和英语护理人员 (N = 30)，以及老年拉丁裔客户和/或拉丁裔家庭护理人员 (N = 14) 的医疗保健和社会服务提供者。应用主题分析方法对访谈笔录进行编码和分析。该密码本是理论驱动的，主要依赖于直接代表文化待遇适应框架组成部分的代码。根据摘录的内容，代码被分类为代表在文化上适应 STAR-VTF 的机会的主题。确定了三个主题：(i) 需要提高对痴呆症的认识并减少耻辱； (ii) 语义很重要，因为某些单词和短语可能具有侮辱性、冒犯性或在文化上不恰当； (iii) 有必要将拉丁裔家庭的传统家庭结构和照料性质纳入方案材料。根据调查结果，对 STAR-VTF 进行了调整，包括扩展内容以提高对痴呆症的理解，修改被视为有问题的语言，并添加文化示例以反映家庭参与照顾痴呆症患者和多代生活的范围。这项定性研究的结果增进了对拉丁裔护理人员经验以及如何修改计划以更好地满足他们的需求的理解。
STAR-Caregivers Virtual Training and Follow-up (STAR-VTF) is an evidence-based intervention that teaches family caregivers how to manage behavioral and psychological symptoms of dementia. The study objective was to identify what adaptations to STAR-VTF are needed to improve cultural relevance for Latino caregivers. A qualitative research study was conducted that interviewed Spanish- and English-speaking caregivers of people with dementia who self-identify as Hispanic/Latino (N= 30) and healthcare and social service providers of older Latino clients and/or Latino family caregivers (N= 14). Thematic analysis methods were applied to code and analyze interview transcripts. The codebook was theory-driven, relying mainly on codes that directly represented components of the Cultural Treatment Adaptation Framework. Based on the content of the excerpts, the codes were sorted into themes that represented opportunities to culturally adapt STAR-VTF. Three themes were identified: (i) there was a need to increase awareness about dementia and decrease stigma; (ii) semantics mattered as certain words and phrases could be stigmatizing, offensive, or culturally inappropriate; and (iii) there was a need to incorporate into program materials the traditional family structure and nature of caregiving in Latino families. Based on findings, adaptations were performed on STAR-VTF that included expanding content to improve understanding of dementia, revising language that was viewed as problematic, and adding cultural examples to reflect the range of family involvement in caring for people living with dementia and multigenerational living. Findings from this qualitative research study advance understanding of the Latino caregiver experience and how to modify programs to better serve their needs.