How do patients with rheumatic disease experience their relationship with their doctors? A qualitative study of experiences of stress and support in the doctor-patient relationship
How do patients with rheumatic disease experience their relationship with their doctors? A qualitative study of experiences of stress and support in the doctor-patient relationship
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DOI：
10.1016/s0738-3991(03)00023-5
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发表时间：
2004-02-01
影响因子：
3.5
通讯作者：
Finset, A
中科院分区：
文献类型：
--
作者：
Haugli, L;Strand, E;Finset, A
这项研究评估了风湿病患者在他们的医疗接触中认为重要的是什么。我们采访了两组患者：一组有明确的炎症条件(类风湿性关节炎(RA)或强直性脊柱炎)(n=12)，另一组有非炎症性广泛性慢性疼痛，如纤维肌痛(n=14)。这两组人都把重点放在了他们与医生的关系上。两个核心主题显得尤为重要：“被人看到”和“被人相信”。然而，这些主题对两个群体来说有着不同的内涵。对于患有炎症性疾病的患者，“被看到”意味着被视为一个个体，而不仅仅是一种诊断，就疼痛和痛苦而言，“被相信”。对于非炎症性慢性疼痛的患者，“被看到”和“被相信”主要意味着能够获得有用的躯体诊断。这些问题的实际影响。文中还讨论了研究结果。(C)2003年，爱思唯尔爱尔兰有限公司出版。
This study is evaluated what patients with rheumatic disease perceive as important in their medical encounters. We interviewed two groups of patients: one with a well-defined inflammatory condition (rheumatoid arthritis (RA) or ankylosing spondylitis) (n = 12) and one with noninflammatory widespread chronic pain such as fibromyalgia (n = 14). Both groups focused on their relationship to their doctor. Two central themes emerged as of importance: 'to be seen' and 'to be believed'. However, these themes had different connotations for the two groups. For the patients with inflammatory conditions, 'to be seen' implied being seen as an individual and not as a mere diagnosis, and 'to be believed' as far as pain and suffering were concerned. For patients with non-inflammatory chronic pain 'to be seen' and 'to be believed' primarily implied being able to obtain a useful somatic diagnosis. Practical implications of these. findings are discussed. (C) 2003 Published by Elsevier Ireland Ltd.