Epilepsy self-management during a pandemic: Experiences of people with epilepsy
Epilepsy self-management during a pandemic: Experiences of people with epilepsy
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DOI：
10.1016/j.yebeh.2020.107238
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发表时间：
2020-10-01
影响因子：
2.6
通讯作者：
Buelow, Janice M.
中科院分区：
文献类型：
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作者：
Miller, Wendy R.;Von Gaudecker, Jane;Buelow, Janice M.
这项描述性研究的目的是从成人癫痫患者 (PWE) 和 PWE 护理人员的角度，探讨当前大流行和由此产生的社会变化对癫痫自我管理的影响。 94 名受访者完成了一项混合方法的定量和定性调查，重点关注他们在冠状病毒病 19 (COVID-19) 大流行期间的癫痫自我管理经历。受访者指出癫痫自我管理受到了严重破坏。据报道，缺乏获得药物或见癫痫治疗提供者的能力，以及压力增加、社会孤立和日常生活的改变都带来了麻烦，超过三分之一的样本报告说，自大流行爆发以来，癫痫发作频率有所增加。提出了关于如何在未来的 COVID-19 爆发期间支持 PWE 的建议，以及如何让 PWE 及其护理人员更好地为任何改变生活的事件（例如大流行）做好准备，并拥有强大的自我管理技能，使他们能够保持尽可能高的功能水平。 (C) 2020 Elsevier Inc. 保留所有权利。
The purpose of this descriptive study was to, from the perspective of adult people with epilepsy (PWE) and caregivers of PWE, explore the effects of the current pandemic and resulting societal changes on epilepsy self-management. Ninety-four respondents completed a mixed-methods quantitative and qualitative survey focused on their epilepsy self-management experiences during the coronavirus disease-19 (COVID-19) pandemic.Respondents noted significant disruption in epilepsy self-management. Lack of ability to obtain medications or see epilepsy providers, as well as increased stress, social isolation, and changes in routine were all reported as troublesome, and more than one-third of the sample reported an increase in seizure frequency since the onset of the pandemic. Suggestions are given regarding how to support PWE during future COVID-19 outbreaks and to better prepare PWE and their caregivers for any life-altering events, such as a pandemic, with robust self-management skills that will allow them to maintain the highest level of function possible. (C) 2020 Elsevier Inc. All rights reserved.