Can a Home-based Cardiac Physical Activity Program Improve the Physical Function Quality of Life in Children with Fontan Circulation?
Can a Home-based Cardiac Physical Activity Program Improve the Physical Function Quality of Life in Children with Fontan Circulation?
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DOI：
10.1111/chd.12330
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发表时间：
2016-03-01
影响因子：
0.3
通讯作者：
Danduran, Michael
中科院分区：
文献类型：
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作者：
Jacobsen, Roni M.;Ginde, Salil;Danduran, Michael
复杂先天性心脏病（CHD）Fontan手术后的患者运动能力下降，并报告健康相关生活质量（HRQOL）下降。研究表明，以医院为基础的心脏体力活动计划可以改善CHD患者的HRQOL和运动能力;然而，这些计划的依从率各不相同。在Fontan幸存者中，以家庭为基础的心脏体力活动计划的影响尚不清楚。这项试点研究评估的安全性，可行性和效益的创新家庭为基础的身体活动计划对HRQOL在Fontan patients.MethodsA共14名儿童，8-12岁，Fontan循环参加了为期12周的中/高强度的家庭为基础的心脏体力活动计划，其中包括一个家庭锻炼常规和3个正式的人在0，6和12周的锻炼会议。受试者和父母完成经验证的问卷，以评估HRQOL。穿梭机测试运行被用来测量运动能力。一个Fitbit Flex活动监视器被用来评估遵守家庭activityprogram.ResultsOf 14例，57%是男性和36%的优势左心室。总的来说，93%的人完成了计划。未发生不良事件。父母报告他们的孩子的整体HRQOL显着改善（P
ObjectivePatients after Fontan operation for complex congenital heart disease (CHD) have decreased exercise capacity and report reduced health-related quality of life (HRQOL). Studies suggest hospital-based cardiac physical activity programs can improve HRQOL and exercise capacity in patients with CHD; however, these programs have variable adherence rates. The impact of a home-based cardiac physical activity program in Fontan survivors is unclear. This pilot study evaluated the safety, feasibility, and benefits of an innovative home-based physical activity program on HRQOL in Fontan patients.MethodsA total of 14 children, 8-12 years, with Fontan circulation enrolled in a 12-week moderate/high intensity home-based cardiac physical activity program, which included a home exercise routine and 3 formalized in-person exercise sessions at 0, 6, and 12 weeks. Subjects and parents completed validated questionnaires to assess HRQOL. The Shuttle Test Run was used to measure exercise capacity. A Fitbit Flex Activity Monitor was used to assess adherence to the home activity program.ResultsOf the 14 patients, 57% were male and 36% had a dominant left ventricle. Overall, 93% completed the program. There were no adverse events. Parents reported significant improvement in their child's overall HRQOL (P