Community consultation for prehospital research: experiences of study coordinators and principal investigators.

Community consultation for prehospital research: experiences of study coordinators and principal investigators.
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DOI:
10.3109/10903127.2013.856503
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发表时间:
2014-04
影响因子:
2.4
通讯作者:
Pentz RD
Pentz RD
中科院分区:
医学3区
文献类型:
--
作者:
Dickert NW;Govindarajan P;Harney D;Silbergleit R;Sugarman J;Weinfurt KP;Pentz RD

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评估主要研究者和研究协调员对在紧急情况下进行的癫痫持续状态院前治疗的多中心试验中的社区咨询的观点和经验。所有17个快速抗惊厥药物到达前试验(RAMPART)中心的主要研究者和研究协调员被邀请在他们的站点完成一项关于RAMPART社区咨询的基于网络的调查。主要领域包括:1)社区咨询的感知目标;2)社区谘询方法的经验及意见;3)与IRB就社区咨询进行互动;4)总体满意度和经验教训。对李克特量表数据进行描述性统计;报告了基于文本的数据的相关主题。代表所有17个RAMPART中心的28名个人(16名协调员和12名调查员)完成了调查。受访者认为多个社区咨询目标是重要的,对社区咨询在改变研究设计中的作用的支持最少。所有站点均采用多种方法(中位数= 5)。最广泛使用和普遍受欢迎的方法是参加预先安排的现有小组会议。受访者对公开会议的出席率低和反应迟钝表示失望。该试验的协调员和调查人员认为社区咨询工作是成功的,但报告了引起公众兴趣的真正挑战。研究发现,患有这种疾病的人对试验的参与和支持程度更高。受访者认可了社区咨询过程的许多潜在目标,并经常结合各种方法来实现这些目标。
To assess principal investigators’ and study coordinators’ views and experiences regarding community consultation in a multi-center trial of prehospital treatment for status epilepticus conducted under an exception from informed consent for research in emergency settings. Principal investigators and study coordinators at all 17 hubs for the Rapid Anticonvulsant Medication Prior to Arrival Trial (RAMPART) were invited to complete a web-based survey regarding community consultation at their site for RAMPART. Major domains included: 1) perceived goals of community consultation; 2) experiences with and views of community consultation methods used; 3) interactions with IRB regarding community consultation; and 4) general satisfaction and lessons learned. Descriptive statistics were tabulated for Likert scale data; relevant themes were reported for text-based data. Twenty-eight individuals (16 coordinators and 12 investigators) representing all 17 RAMPART hubs completed the survey. Respondents considered multiple community consultation goals to be important, with least support for the role of community consultation in altering study design. All sites used multiple methods (median= 5). The most widely used, and generally favored, method was attending previously scheduled meetings of existing groups. Respondents expressed frustration with low attendance and responsiveness at open public meetings. Coordinators and investigators in this trial viewed community consultation efforts as successful but reported real challenges generating public interest. Individuals with the condition under study were found to be more engaged and supportive of the trial. Respondents endorsed numerous potential goals of the community consultation process and often combined methods to achieve these goals.
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