Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease
Pilot of the Chronic Disease Self-Management Program for Adolescents and Young Adults With Sickle Cell Disease
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DOI：
10.1016/j.jadohealth.2016.08.022
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发表时间：
2017-01-01
影响因子：
7.6
通讯作者：
Britto, Maria T.
中科院分区：
文献类型：
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作者：
Crosby, Lori E.;Joffe, Naomi E.;Britto, Maria T.
目的：本研究评估了针对患有镰状细胞病 (SCD) 的青少年和年轻人 (AYA) 进行团体自我管理干预的可行性，即完善的斯坦福慢性病自我管理计划 (CDSMP)。方法：共有 22 名患有 SCD 的 AYA 参与者，年龄 16-24 岁，在 CDSMP 之前、之后以及 3 和 6 个月后完成了自我效能和生活质量测量。 结果：该 AYA 队列干预后，自我效能感（主要结果）显着改善。后续数据分析显示，CDSMP 在 3 个月后对患者激活产生中等影响，尽管这种影响并不持续。参与者非常满意，但只有 64% 完成了该计划。结论：本研究表明 CDSMP 是可以接受的，并且有能力提高自我效能。需要进行更多研究来确定患有 SCD 的 AYA 的可行性并评估其健康结果。 (C) 2016 年青少年健康与医学协会。版权所有。
Purpose: This study evaluated the feasibility of a group self-management intervention, the well-established Stanford Chronic Disease Self-Management Program (CDSMP), for adolescents and young adults (AYA) with sickle cell disease (SCD).Methods: A total of 22 AYA participants with SCD, ages 16-24 years, completed self-efficacy and quality of life measures before the CDSMP, after, and 3 and 6 months later.Results: This AYA cohort showed significant improvements in self-efficacy (primary outcome) after the intervention. Analyses of follow-up data revealed a medium effect of the CDSMP on patient activation 3 months post although this was not sustained. Participants were highly satisfied, but only 64% completed the program.Conclusions: This study demonstrates that the CDSMP is acceptable and has the ability to improve self-efficacy. Additional research is needed to determine feasibility and evaluate health outcomes for AYA with SCD. (C) 2016 Society for Adolescent Health and Medicine. All rights reserved.