Resuming previously valued activities post-stroke: who or what helps?

Resuming previously valued activities post-stroke: who or what helps?
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DOI:
10.1080/09638280802639327
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发表时间:
2009-01-01
影响因子:
2.2
通讯作者:
Ashburn, A.
Ashburn, A.
中科院分区:
医学3区
文献类型:
--
作者:
Robison, J.;Wiles, R.;Ashburn, A.

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目的.在这篇文章中,我们的目标是发展的理解是什么帮助或阻碍恢复有价值的活动,直到12个月后中风。作为纵向研究的一部分,对19名中风患者和8名中风后12个月的非正式护理人员进行了半结构化访谈。访谈内容包括卒中的持续影响、卒中前重要的恢复活动经验以及影响进展的因素。访谈被转录,编码和深入分析,以探讨这方面的经验,生活与中风。讨论的有价值的活动与就业有关;家庭和社会角色,包括驾驶;爱好,体育和社交。个人的结果受到以下因素的影响:身体或认知残疾;环境因素;个人的适应能力;来自他人和专业帮助的支持。无法恢复活动影响了人们的自我意识和生活质量,但有些人能容忍变化,并表现出适应性。这项研究表明了康复服务的长期作用,例如:确定不同类型活动的重要性;为疲劳和头晕等衰弱症状提供支持和治疗;解决患者对其病情的情绪和行为反应;与患者更广泛的社交网络合作,并酌情支持适应改变的生活方式。
Purpose. In this article, we aim to develop the understanding of what helps or hinders resumption of valued activities up to 12-months post-stroke.Method. As part of a longitudinal study, semi-structured interviews were conducted with 19 people with stroke and eight informal carers 12-months post-stroke. Interviews covered ongoing effects of stroke, experience of trying to resume activities highlighted as important pre-stroke and factors that influenced progress. Interviews were transcribed, coded and analysed in depth to explore this aspect of the experience of living with stroke.Results. Valued activities discussed related to employment; domestic and social roles including driving; hobbies, sports and socialising. Outcomes for individuals were influenced by: aspects of physical or cognitive disability; environmental factors; the adaptability of the individual; support from others and professional help. Inability to resume activities impacted on people's sense of self and quality of life, but some tolerated change and presented themselves as adaptable.Conclusions. This study indicates a long-term role for rehabilitation services such as: identifying the significance of different types of activities; providing access to support and treatment for debilitating symptoms such as fatigue and dizziness; addressing patients' emotional and behavioural responses to their condition; working with patients' wider social networks and where appropriate, supporting adaptation to a changed way of life.