No consensus on definition criteria for stroke registry common data elements.
No consensus on definition criteria for stroke registry common data elements.
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DOI：
10.1159/000334146
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发表时间：
2011-01
影响因子：
1.9
通讯作者：
Savitz SI
中科院分区：
文献类型：
--
作者：
Albright KC;Martin-Schild S;Bockholt HJ;Howard G;Alexandrov A;Alexandrov A;Sline MR;Grotta JC;Savitz SI
卒中登记有助于临床研究的开展和医疗质量控制的评估。比较各中心临床结局和质量指标的努力取决于标准化的数据元素，但目前尚不清楚卒中医生在收集中心登记数据时如何定义常见数据元素，如高血压或糖尿病。我们对一所大学附属的91个中心进行了一项基于互联网的调查，以评估他们对常见数据元素（CDE）的定义，并将他们的回答与标准化定义进行比较，包括美国心脏病学会（ACC）的定义。超过一半（52%）的中心完成了调查。答复者对调查中的消费品指定实体的定义只有一定的一致性，而对如何将答复者的定义与行政协调会的标准进行比较则更不一致。被调查者不同意CDE的定义，使中心之间的比较有问题。需要CDE的标准化定义来改善患者护理和临床研究的数据收集。
Stroke registries contribute to the conduct of clinical research and to the assessment of health care quality control. Efforts to compare clinical outcomes and quality indicators between centers are dependent on standardized data elements, but it is unknown how stroke physicians define common data elements, such as hypertension or diabetes, when collecting data for registries at their centers. We conducted an internet-based survey of 91 centers affiliated with a university to assess their definitions of common data elements (CDEs) and compared their responses with standardized definitions, including those from the American College of Cardiology (ACC). More than half (52%) of centers completed the survey. There was only modest agreement among respondents regarding definitions of CDEs in the survey and even less agreement on how the respondents’ definitions compared to ACC standards. Surveyed respondents do not agree on the definitions of CDEs, making comparisons between centers problematic. Standardized definitions of CDEs are needed to improve data collection for patient care and clinical research.