Psychiatry Outpatients' Willingness to Share Social Media Posts and Smartphone Data for Research and Clinical Purposes: Survey Study.
Psychiatry Outpatients' Willingness to Share Social Media Posts and Smartphone Data for Research and Clinical Purposes: Survey Study.
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DOI：
10.2196/14329
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发表时间：
2019-08-29
影响因子：
2.2
通讯作者：
Crits-Christoph, Paul
中科院分区：
文献类型：
--
作者：
Rieger, Agnes;Gaines, Averi;Crits-Christoph, Paul
背景：精神病学研究已经开始利用从患者的社交媒体和智能手机使用中收集的数据。然而，关于这些数据在门诊环境中使用的可行性以及这些数据在研究和实践中的可接受性的信息有限。目的：本研究旨在了解门诊患者从他们的社交媒体帖子和用于临床或研究目的的智能手机中获取信息的意愿。方法：在这项调查研究中，我们在门诊候诊室调查了238名患者。结果：大多数拥有社交媒体账户并正在接受谈话治疗的患者(74.4%，99/133)表示，他们愿意与治疗师分享他们在社交媒体上发布的帖子。根据参数的不同，患者愿意与研究人员分享被动智能手机数据的比例从40.8%(82/201)到60.7%(122/201)不等，其中睡眠时间是患者愿意分享的比例最高的参数。共有30.4%的患者表示，社交媒体隐私泄露的媒体报道让他们在与研究人员分享被动智能手机数据时更加犹豫。性别和种族与分享智能手机数据的意愿有关，其中男性和白人最愿意分享。结论：我们的结果表明，精神科门诊的大多数患者会分享社交媒体和被动智能手机数据，需要进一步的研究来阐明分享被动数据的意愿模式。
BACKGROUND: Psychiatry research has begun to leverage data collected from patients' social media and smartphone use. However, information regarding the feasibility of utilizing such data in an outpatient setting and the acceptability of such data in research and practice is limited.OBJECTIVE: This study aimed at understanding the outpatients' willingness to have information from their social media posts and their smartphones used for clinical or research purposes.METHODS: In this survey study, we surveyed patients (N=238) in an outpatient clinic waiting room. Willingness to share social media and passive smartphone data was summarized for the sample as a whole and broken down by sex, age, and race.RESULTS: Most patients who had a social media account and who were receiving talk therapy treatment (74.4%, 99/133) indicated that they would be willing to share their social media posts with their therapists. The percentage of patients willing to share passive smartphone data with researchers varied from 40.8% (82/201) to 60.7% (122/201) depending on the parameter, with sleep duration being the parameter with the highest percentage of patients willing to share. A total of 30.4% of patients indicated that media stories of social media privacy breaches made them more hesitant about sharing passive smartphone data with researchers. Sex and race were associated with willingness to share smartphone data, with men and whites being the most willing to share.CONCLUSIONS: Our results indicate that most patients in a psychiatric outpatient setting would share social media and passive smartphone data and that further research elucidating patterns of willingness to share passive data is needed.