Record-linkage between two anonymous databases for a capture-recapture estimation of underreporting of AIDS cases: France 1990-1993
Record-linkage between two anonymous databases for a capture-recapture estimation of underreporting of AIDS cases: France 1990-1993
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DOI：
10.1093/ije/29.1.168
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发表时间：
2000-02-01
影响因子：
7.7
通讯作者：
Costagliola, D
中科院分区：
文献类型：
--
作者：
Bernillon, P;Lievre, L;Costagliola, D
目的采用捕获-再捕获的方法，将强制报告的艾滋病病例与法国医院艾滋病病毒感染数据库(FHDH)中的艾滋病病例进行比对，以评估法国强制艾滋病监测系统(声明强制性艾滋病监测系统)在1990-1993年间的完整性。这种关联是基于性别、出生日期和感染风险组，都是严格匹配的，以及艾滋病诊断和死亡日期、诊断地点和居住地，以及诊断时定义艾滋病的疾病。结果1990~1993年法国成人艾滋病病例监测强制性报告完成率为83.6%(95%CI：82.9~84.3)，FHDH为47.6%(95%CI：46.9~48.3)。在研究期间，随着越来越多的医院加入该项目，基于FHDH的系统的完整性增加，而DO监测系统的完整性保持稳定。结论该方法有助于估计法国艾滋病病例的漏报情况。如果定期执行，将能够随着时间的推移监测报告不足的影响。
Objective To estimate the completeness of the French mandatory AIDS surveillance system (Declaration Obligatoire DO) over the 1990-1993 period using a capture-recapture approach, by matching the mandatory reports with the AIDS cases present in the French Hospital Database on HIV infection (FHDH).Methods An anonymous record-linkage algorithm was developed to identify those cases common to both anonymous surveillance systems. The linkage was based on sex, date of birth, and infection risk group, all strictly matched, and on the dates of AIDS diagnosis and of death, the places of diagnosis and residence, and the AIDS-defining diseases at diagnosis. The total number of AIDS cases and completeness of both surveillance systems were estimated using a capture-recapture approach, assuming independence of the ascertainment sources.Results The completeness of the mandatory reporting was estimated at 83.6% (95% CI:82.9-84.3), and that of the FHDH at 47.6% (95% CI:46.9-48.3) for the surveillance of AIDS cases diagnosed among adults in France between 1990 and 1993. The completeness of the system based on FHDH increased over the study period as more hospitals joined the project, while the completeness of the DO surveillance system remained stable.Conclusion This approach was useful in estimating the underreporting of AIDS cases in France. Regularly performed, it will allow the impact of underreporting to be monitored over time.