Feasibility of an Intervention Study to Support Families When Their Loved One Has Life-sustaining Therapy Withdrawn.
Feasibility of an Intervention Study to Support Families When Their Loved One Has Life-sustaining Therapy Withdrawn.
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DOI：
10.1097/njh.0000000000000717
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发表时间：
2021-02-01
期刊：
影响因子：
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通讯作者：
Weigand D
中科院分区：
文献类型：
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作者：
Scharf B;Zhu S;Tomlin S;Cheon J;Mooney-Doyle K;Baggs JG;Weigand D
本调查探讨了家庭成员在ICU中准备退出维持生命治疗的看法。这些家庭有很高的社会心理和身体后遗症风险。本文报道了这种混合方法研究的定量结果。对照组接受常规护理和干预的教育小册子。实验组在接受上述治疗的同时，还接受了舒适车项目和额外的心理支持。28个家庭成员在13个月的时间里登记了。61%（干预组10例，对照组7例）完成随访。14名（82%）家庭成员回忆起这本小册子。一些家庭成员报告了中度至重度抑郁（12.5%）、焦虑（12.5%）和压力（12.6%）。护理满意度（83.7% - 85.2%）和家庭成员幸福感（44.1%）均在正常范围内。SF-36生理成分得分高于常模，心理成分得分低于常模。本研究表明，当家庭做出退出治疗的艰难决定时，干预措施和随访问卷的可行性和可接受性。提出了加强统计力量的对策。
This investigation addressed family member perceptions of preparation for withdrawal of life-sustaining treatment in the ICU. These families are at high risk for psychosocial and physical sequelae. The quantitative results of this mixed methods study are reported. A control group received usual care and in an educational booklet component of the intervention. The experimental group received the above plus exposure to comfort cart items and additional psychological support. Twenty-eight family members enrolled over a 13-month period. Sixty-one percent (10 intervention, 7 control) completed the follow up. Fourteen (82%) family members recalled the booklet. Some family members reported moderate to severe depression (12.5%), anxiety (12.5%), and stress (12.6%). Satisfaction with care (83.7–85.2%) and family member well-being (44.1) were within the norm. SF-36 physical component score was above the norm and the mental component score was below the norm. This study demonstrated feasibility and acceptability of the interventions and follow-up questionnaires when families make the difficult decision to withdraw treatment. Strategies are suggested to strengthen statistical power.