Pediatric hearing impairment caregiver experience: Impact of duration of hearing loss on parental stress
Pediatric hearing impairment caregiver experience: Impact of duration of hearing loss on parental stress
复制标题
DOI：
10.1016/j.ijporl.2008.08.005
复制
发表时间：
2008-11-01
影响因子：
1.5
通讯作者：
Wiley, Susan
中科院分区：
文献类型：
--
作者：
Meinzen-Derr, Jareen;Lim, Lynne H. Y.;Wiley, Susan
目的：据报告，照顾失聪/重听儿童的人比照顾听力正常儿童的人压力更大。诊断的时间是一个特别紧张的时间，压力水平可能会随着时间的推移而变化，这取决于不同生活事件的不同需求。因此，我们假设，照顾者经历的压力随着时间的推移而演变，并受到影响的持续时间，因为诊断hearingloss.Methods：68项小儿听力障碍照顾者的经验（PHICE）是一个有效的问卷调查，用于测量压力。对152名永久性听力损失儿童的照顾者进行了PHICE。域分数被转换成Z-分数的趋势分析的压力随着时间的推移。结果：父母的孩子的听力折腾被确定超过60个月前报告更高的压力水平教育方面的孩子的需求相比，父母的孩子不到24个月或24-60个月的时间，因为诊断。在过去的24个月内被诊断为听力损失的儿童的父母报告说，在该地区的医疗保健比父母的儿童诊断大于24 months.Conclusions的压力水平较高：父母的压力随着时间的推移而变化，就诊断听力障碍的时间。这种现象与诊断听力损失的年龄无关。作为服务于听力损失儿童家庭的专业人士，我们应该意识到随着时间的推移不断变化的压力源，并为家庭确定适当的支持服务，以满足这些不断变化的需求。通过解决这些不断变化的压力因素，家庭支持和改善失聪或重听子女的结果的能力可能会得到加强。(C)2008爱思唯尔爱尔兰有限公司保留所有权利。
Objectives: Caregivers of children who are deaf/hard of hearing have been reported to have greater stress than caregivers of children with normal hearing. The time of diagnosis is a particularly stressful time and stress levels may change over time based on varying needs at different life events. Thus, we hypothesized that stress experienced by caregivers evolves over time and is impacted by the duration since the diagnosis of hearing loss.Methods: The 68-item pediatric hearing impairment caregiver experience (PHICE) is a validated questionnaire used to measure stress. The PHICE was administered to 152 caregivers of children with permanent hearing loss. Domain scores were converted into z-scores for analysis of trends of stress over time.Results: Parents of children whose hearing toss was identified more than 60 months ago reported higher stress levels regarding educational aspects of their child's needs as compared to parents of children with less than 24 months or 24-60 months duration since diagnosis. Parents of children diagnosed with hearing loss within the preceding 24 months reported higher stress levels in the area of healthcare than parents of children diagnosed greater than 24 months ago.Conclusions: Parental stressors change over time with respect to the time of diagnosis of hearing impairment. This phenomenon was observed irrespective of the age of diagnosis of hearing loss. As professionals serving families of children with hearing loss, we should be aware of changing stressors over time and identify the appropriate support services for families to meet those changing needs. By addressing those evolving stressors, the families' ability to support and improve the outcomes for their children who are deaf or hard of hearing may be enhanced. (C) 2008 Elsevier Ireland Ltd. All rights reserved.