Disease-specific influences on meaning and significance in self-care decision-making in chronic illness.
Disease-specific influences on meaning and significance in self-care decision-making in chronic illness.
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特定疾病对慢性病自我保健决策的意义和重要性的影响。
DOI：
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发表时间：
2016
期刊：
影响因子：
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通讯作者：
C. Russell
中科院分区：
文献类型：
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作者：
B. Paterson;S. Thorne;C. Russell
本研究的目的是调查慢性病患者的日常自我护理决策，以比较慢性病患者的决策过程，并确定各种慢性病患者评估自我护理决策质量的标准。21名患有II型糖尿病、艾滋病毒/艾滋病或多发性硬化症的患者被他们的临床医生提名为专家自我护理管理者，他们记录了他们在一周内日常自我护理中做出的决定，并进行了深入的访谈，以详细说明这些决定、他们做出这些决定的过程以及影响他们的因素。重复这一过程是为了获得有关决定和决策过程的深度和细节。研究结果显示，尽管参与者在自我护理决策中具有相似的要素，但他们在决策的感知意义和重要性方面存在差异，这取决于与及时性，生物标志物，社会背景下的相互作用，健康实践的构建以及可用的相关信息有关的疾病特定属性。研究结果进行了分析和比较，建议未来的研究和教育干预的方向，以提高自我护理决策的质量，在慢性疾病的自我护理管理考虑疾病的具体属性的影响。
The purpose of this study was to investigate the everyday self-care decision-making of individuals with chronic illness for the purpose of developing a comparison of decision-making processes between chronic diseases and to identify criteria by which persons with various chronic conditions evaluate the quality of self-care decisions. A sample of 21 individuals with either Type II diabetes, HIV/AIDS, or multiple sclerosis, who were nominated as expert self-care managers by their clinicians, recorded the decisions they made in their daily self-care over a 1-week period and were interviewed in depth to elaborate on the decisions, the processes by which they made them, and the factors that influenced them. This process was repeated to obtain depth and detail in relation to decisions and decision-making processes. The findings revealed that although participants shared similar elements in their self-care decision-making, they differed in the perceived meaning and significance of their decisions, depending on disease-specific attributes relating to timeliness, biomarkers, interaction within a social context, the construction of healthy practices, and available relevant information. Findings were analyzed and compared to suggest future directions for research and educational interventions to enhance the quality of self-care decision-making in chronic illness by considering the influence of disease-specific attributes in self-care management.