Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network.
Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network.
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DOI：
10.5334/egems.273
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发表时间：
2019-03-29
期刊：
影响因子：
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通讯作者：
Greene, Sarah M
中科院分区：
文献类型：
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作者：
Doria-Rose, V Paul;Greenlee, Robert T;Greene, Sarah M
癌症研究网络(CRN)是由12个研究小组组成的联盟，每个研究小组都附属于一个非营利性综合医疗保健提供系统，该系统于1998年首次获得资助。CRN的总体目标是支持和促进其组件传递系统内的协作性癌症研究。本文介绍了CRN 20年的发展历程和发展历程。该网络结合了其成员的科学能力和数据资源，创建了一个最终支持275个项目的基础设施。课程描述了对电子健康数据用于研究的优势和局限性的见解，优化多学科合作的方法，以及健康服务研究基础设施在补充传统临床试验和大型观察性数据集方面的作用，以及对其他研究联盟的建议。
The Cancer Research Network (CRN) is a consortium of 12 research groups, each affiliated with a nonprofit integrated health care delivery system, that was first funded in 1998. The overall goal of the CRN is to support and facilitate collaborative cancer research within its component delivery systems. This paper describes the CRN's 20-year experience and evolution. The network combined its members' scientific capabilities and data resources to create an infrastructure that has ultimately supported over 275 projects. Insights about the strengths and limitations of electronic health data for research, approaches to optimizing multidisciplinary collaboration, and the role of a health services research infrastructure to complement traditional clinical trials and large observational datasets are described, along with recommendations for other research consortia.