Development and validation of the Pediatric Epilepsy Medication Self-Management Questionnaire

Development and validation of the Pediatric Epilepsy Medication Self-Management Questionnaire
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DOI:
10.1016/j.yebeh.2010.03.009
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发表时间:
2010-05-01
影响因子:
2.6
通讯作者:
Glauser, Tracy A.
Glauser, Tracy A.
中科院分区:
医学3区
文献类型:
--
作者:
Modi, Avani C.;Monahan, Sally;Glauser, Tracy A.

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研究目的是描述儿童癫痫药物自我管理问卷(PEMSQ)的开发和验证的照顾者的儿童2-14岁。预计PEMSQ量表将具有1)具有高度内部一致性的因素(例如,Cronbach α>0.70)和2)与依从性和癫痫发作中度相关。参与者包括119名癫痫儿童(M年龄= 7.2岁,36%女性,72%白人)的照顾者,他们完成了PEMSQ人口统计学问卷,并评估了AED依从性(例如,电子监控,自我报告)。进行因素分析,内部一致性和结构效度进行了评估。最终的PEMSQ是27个项目,包括4个量表(癫痫和治疗知识和期望,药物和临床治疗依从性,药物依从性障碍和药物疗效信念),占88%的方差。Cronbach α值范围为0.68-0.85。PEMSQ量表、依从性和癫痫发作之间存在显著相关性。PEMSQ是第一个自我管理措施验证的照顾者癫痫儿童,临床和研究效用。(C)2010年爱思唯尔公司All rights reserved.
Study aims were to describe the development and validation of a Pediatric Epilepsy Medication Self-Management Questionnaire (PEMSQ) for caregivers of children 2-14 years. It was expected that PEMSQ scales would have 1) factors with high internal consistency (e.g.. Cronbach's alpha>0.70) and 2) moderate associations with adherence and seizures. Participants included caregivers of 119 children with epilepsy (M-age = 7.2 yrs. 36% female, 72% Caucasian) who completed the PEMSQ demographics questionnaire, and AED adherence was assessed (e.g., electronic monitors, self-report). Factor analysis was conducted and internal consistency and construct validity were assessed. The final PEMSQ is 27 items with four scales (Epilepsy and Treatment Knowledge and Expectations, Adherence to Medications and Clinic Appointments, Barriers to Medication Adherence, and Beliefs about Medication Efficacy) accounting for 88% variance. Cronbach's alphas ranged from 0.68-0.85. Significant associations were found between PEMSQ scales, adherence, and seizures. The PEMSQ represents the first self-management measure validated for caregivers of children with epilepsy, with clinical and research utility. (C) 2010 Elsevier Inc. All rights reserved.