Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups.
Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups.
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DOI：
10.1186/1471-2288-14-42
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发表时间：
2014-03-25
影响因子：
4
通讯作者：
Hughes C
中科院分区：
文献类型：
--
作者：
Bonevski B;Randell M;Paul C;Chapman K;Twyman L;Bryant J;Brozek I;Hughes C
本研究旨在回顾有关健康研究中社会经济弱势群体成员的抽样、招募、参与和保留障碍的文献，以及增加对社会经济弱势群体进行健康研究的策略。本文采用叙事综合的方法进行了系统综述。检索截至2013年5月发表的英文文章，检索电子数据库Medline、PsychInfo、EMBASE、Social Science Index via Web of Knowledge和CINHAL。包括定性和定量研究以及文献综述。如果文章报道了增加弱势群体参与研究的尝试，或者报道了对弱势群体进行研究的障碍，则文章被纳入。感兴趣的群体是那些被描述为与社会大多数人相比在社会、文化或经济上处于劣势的群体。符合条件的文章根据研究的五个阶段进行分类：1)抽样，2)招募和获得同意，3)数据收集和测量，4)干预措施的提供和吸收，5)保留和流失。来自115项研究的116篇论文符合纳入标准，31篇既往文献综述被纳入。本文全面总结了与各种处境不利群体合作的主要障碍，并提出了解决每一种已查明障碍的拟议战略。大多数关于解决障碍策略的研究都是描述性的，只有9项研究报告了随机试验的结果。为了应对与社会弱势群体一起进行研究的挑战，并增加他们在卫生和医学研究中的代表性，研究人员和研究机构需要认识到延长的时间框架，为更高的资源成本做好计划，并通过社区伙伴关系开展工作。
This study aims to review the literature regarding the barriers to sampling, recruitment, participation, and retention of members of socioeconomically disadvantaged groups in health research and strategies for increasing the amount of health research conducted with socially disadvantaged groups. A systematic review with narrative synthesis was conducted. Searches of electronic databases Medline, PsychInfo, EMBASE, Social Science Index via Web of Knowledge and CINHAL were conducted for English language articles published up to May 2013. Qualitative and quantitative studies as well as literature reviews were included. Articles were included if they reported attempts to increase disadvantaged group participation in research, or the barriers to research with disadvantaged groups. Groups of interest were those described as socially, culturally or financially disadvantaged compared to the majority of society. Eligible articles were categorised according to five phases of research: 1) sampling, 2) recruitment and gaining consent, 3) data collection and measurement, 4) intervention delivery and uptake, and 5) retention and attrition. In total, 116 papers from 115 studies met inclusion criteria and 31 previous literature reviews were included. A comprehensive summation of the major barriers to working with various disadvantaged groups is provided, along with proposed strategies for addressing each of the identified types of barriers. Most studies of strategies to address the barriers were of a descriptive nature and only nine studies reported the results of randomised trials. To tackle the challenges of research with socially disadvantaged groups, and increase their representation in health and medical research, researchers and research institutions need to acknowledge extended timeframes, plan for higher resourcing costs and operate via community partnerships.
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影响因子：
4
作者：
Bryant J;Bonevski B;Paul C;Lecathelinais C
通讯作者：
Lecathelinais C
影响因子：
7.4
作者：
Atkinson, Nancy L.;Saperstein, Sandra L.;Tian, Jing
通讯作者：
Tian, Jing
影响因子：
1.9
作者：
Ashing-Giwa, Kimlin;Rosales, Monica
通讯作者：
Rosales, Monica
影响因子：
12.7
作者：
Brown-Peterside, P;Rivera, E;Koblin, BA
通讯作者：
Koblin, BA
影响因子：
3.2
作者：
Benoit, C;Jansson, M;Phillips, R
通讯作者：
Phillips, R