Identifying Unmet Needs of Family Dementia Caregivers: Results of the Baseline Assessment of a Cluster-Randomized Controlled Intervention Trial
Identifying Unmet Needs of Family Dementia Caregivers: Results of the Baseline Assessment of a Cluster-Randomized Controlled Intervention Trial
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DOI：
10.3233/jad-180244
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发表时间：
2019-01-01
影响因子：
4
通讯作者：
Hoffmann, Wolfgang
中科院分区：
文献类型：
--
作者：
Zwingmann, Ina;Michalowsky, Bernhard;Hoffmann, Wolfgang
背景：为痴呆症患者（PwD）提供非正式护理的护理人员经常报告未满足的需求，负担和健康损害。更好地了解和评估照顾者未满足需求的患病率和类型以及相关的社会人口统计学和临床特征，可能会对痴呆症家庭照顾者提供最佳支持。目的：本研究调查1）照顾者未满足需求的数量和类型，2）PwD和照顾者的社会人口统计学和临床特征，3）照顾者的负担和与照顾者未满足的需求相关的健康相关结果。目前的分析是基于n= 226对照顾者和他们的社区居住PwD参与一个全面的标准化，结果：在基线时，从干预组的171名护理人员中确定了总共n = 505个未满足的需求。只有24.3%的照顾者报告没有未满足的需求（n = 55），而75.7%的照顾者至少有一个未满足的需求（n = 171）。护理人员平均有2.19个未满足的需求（平均值= 2.19，SD = 2.15）。具体而言，53.1%的看护者有1至3个未满足的需求（n= 120），18.6%（n= 42）有3至6个未满足的需求，4.0%（n=9）有6个以上未满足的需求。我们的研究结果强调了对家庭痴呆症照顾者进行全面需求评估的重要性，以制定和实施可以为家庭痴呆症照顾者提供最佳护理的概念。支持.
Background: Caregivers providing informal care for people with dementia (PwD) often report unmet needs, burden, and health impairments. Optimal support for family dementia caregivers will likely benefit from better understanding and assessment of the prevalence and types of caregivers' unmet needs and associated socio-demographic and clinical characteristics.Objective: The present study investigates 1) the number and types of caregivers' unmet needs, 2) socio-demographic and clinical characteristics of both PwD and caregivers, and 3) caregivers' burden and health-related outcomes that are related to caregivers' unmet needs.Methods: The present analyses are based on cross-sectional data of n= 226 dyads of caregivers and their communitydwelling PwD participating in a comprehensive standardized, computer-based caregivers' needs assessment within a general practitioner (GP)-based, cluster-randomized intervention trial.Results: A total of n = 505 unmet needs were identified for n= 171 caregivers from the intervention group at baseline. Only 24.3% caregivers reported no unmet need (n = 55), whereas 75.7% caregivers had at least one unmet need (n = 171). Caregivers had on average 2.19 unmet needs (mean = 2.19, SD = 2.15). Specifically, 53.1% of caregivers had one up to three unmet needs (n= 120), 18.6% (n= 42) had three up to six unmet needs, and 4.0% (n=9) had more than six unmet needs.Discussion: Our results underline the importance of a comprehensive needs assessment for family dementia caregivers to develop and implement concepts that can provide family dementia caregivers with optimal support.