Parental Distress and Quality of Life in Pediatric Inflammatory Bowel Disease: Implications for the Outpatient Clinic
Parental Distress and Quality of Life in Pediatric Inflammatory Bowel Disease: Implications for the Outpatient Clinic
复制标题
DOI：
10.1097/mpg.0000000000001756
复制
发表时间：
2018-04-01
影响因子：
2.9
通讯作者：
Kindermann, Angelika
中科院分区：
文献类型：
--
作者：
Diederen, Kay;Haverman, Lotte;Kindermann, Angelika
目的：儿童炎症性肠病（IBD）病程与父母痛苦之间的相互关系，以及这可能对儿童健康相关生活质量（HRQOL）的后续影响尚不清楚。因此，我们调查了患者的HRQOL和父母的痛苦和IBD，父母的痛苦，和HRQOL的儿科患者IBD的过程之间的关联。方法：IBD（8-18岁）和父母的儿科患者被邀请。患者完成了儿科生活质量调查表，父母同时完成了父母的痛苦温度计。病程表示为当前临床疾病活动或自上次IBD发作以来的月数。患者的HRQOL和父母的困扰进行了比较，健康controls.Results：在总数，87例（71%的反应率，59%的男孩，中位年龄15.2岁）和父母。患者的总HRQOL受损（=0.125，P=0.010），由较低的身体（0.196，P=0.001）和学校（=0.232，P
Objectives:The interrelation between the course of inflammatory bowel disease (IBD) in children and parent's distress, and the subsequent impact this may have on health-related quality of life (HRQOL) of the child is unclear. Therefore, we investigated patient's HRQOL and parental distress and the association between the course of IBD, parental distress, and HRQOL of pediatric patients with IBD.Methods:Pediatric patients with IBD (8-18 years) and parents were invited. Patients completed the Pediatric Quality of Life Inventory, and parents the Distress Thermometer for Parents, simultaneously. Disease course was expressed as current clinical disease activity or months since last IBD flare. Patient's HRQOL and parental distress were compared to healthy controls.Results:In total, 87 patients (71% response rate, 59% boys, median age 15.2 years) and parents were included. Patients had an impaired total HRQOL (=0.125, P=0.010), driven by lower physical (0.196, P=0.001) and school (=0.232, P