Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder
Family burden related to clinical and functional variables of people with intellectual disability with and without a mental disorder
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DOI：
10.1016/j.ridd.2011.12.002
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发表时间：
2012-05-01
影响因子：
3.1
通讯作者：
Ochoa, S.
中科院分区：
文献类型：
--
作者：
Irazabal, M.;Marsa, F.;Ochoa, S.
很少有研究发现，以评估解释智力残疾（ID）和智力残疾和精神障碍（ID-MD）成年人家庭负担水平较高的因素。本研究的目的是评估ID和ID-MD患者的家庭负担，并确定哪些社会人口统计学，临床和功能残疾变量占家庭负担。样本由203名残疾人及其照顾者组成，其中33.5%是ID患者的照顾者，66.5%是ID-MD患者。使用临床和功能残疾量表进行评估，如以下工具：韦施勒成人智力量表III（WAIS-III）、客户和机构规划清单（ICAP）、发育障碍成人精神病评估表（PAS-ADD检查表），世界卫生组织残疾评估表（WHO-DAS-II）和家庭负担（主观和客观家庭负担调查表- SOFBI/ECFOS-II）。ID-MD患者的功能障碍水平高于ID患者。高水平的家庭负担与所有领域的高功能残疾（p < 0.006-0.001）、低智商（p < 0.001）、ID-MD诊断（p < 0.001）以及器质性、情感性、精神病性和行为障碍的存在（p < 0.001）相关。多元逐步回归分析显示，行为问题、情感和精神障碍、社会参与障碍、个人护理障碍和ID-MD可解释家庭负担的61%以上。使用有效的多维干预措施的综合方法对ID和ID-MD患者及其照顾者都至关重要，以减轻家庭负担。(C)2011爱思唯尔有限公司保留所有权利。
Few studies have been found that to assess the factors that explain higher levels of family burden in adults with intellectual disability (ID) and intellectual disability and mental disorders (ID-MD). The aims of this study were to assess family burden in people with ID and ID-MD and to determine which sociodemographic, clinical and functional disability variables account for family burden. The sample is composed of pairs of 203 participants with disability and their caregivers, of which 33.5% are caregivers of people with ID and 66.5% of ID-MD. Assessments were performed using scales of clinical and functional disability as the following instruments: Weschler Adult Intelligence Scale-III (WAIS-III), Inventory for Client and Agency Planning (ICAP), Psychiatric Assessment Schedule for Adults with Development Disability (PAS-ADD checklist), Disability Assessment Schedule of the World Health Organization (WHO-DAS-II) and family burden (Subjective and Objective Family Burden Inventory - SOFBI/ECFOS-II). People with ID-MD presented higher levels of functional disability than those with ID only. Higher levels of family burden were related to higher functional disability in all the areas (p < 0.006-0.001), lower intelligence quotient (p < 0.001), diagnosis of ID-MD (p < 0.001) and presence of organic, affective, psychotic and behavioral disorders (p < 0.001). Stepwise multiple regression showed that behavioral problems, affective and psychotic disorder, disability in participation in society, disability in personal care and presence of ID-MD explained more than 61% of the variance in family burden. An integrated approach using effective multidimensional interventions is essential for both people with ID and ID-MD and their caregivers in order to reduce family burden. (C) 2011 Elsevier Ltd. All rights reserved.