"I Am the Home Care Agency": The Dementia Family Caregiver Experience Managing Paid Care in the Home.
"I Am the Home Care Agency": The Dementia Family Caregiver Experience Managing Paid Care in the Home.
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DOI：
10.3390/ijerph19031311
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发表时间：
2022-01-25
影响因子：
--
通讯作者：
Ornstein KA
中科院分区：
文献类型：
--
作者：
Reckrey JM;Watman D;Tsui EK;Franzosa E;Perez S;Fabius CD;Ornstein KA
随着美国的长期护理中心从机构转移到社区，受薪照顾者(即家庭保健助理、个人护理人员)正在为住在家里的痴呆症患者提供更多的亲身护理。然而，关于家庭照顾者如何与付费照顾者打交道，人们知之甚少。我们对严重痴呆症患者的家庭照顾者进行了深入的、半结构化的访谈(n=15)，并用第二组痴呆症患者的家庭照料者的数据丰富了我们的发现(n=9)。无论付费照顾者是私人雇佣的，还是通过医疗补助资助的机构雇用的，家庭照顾者都报告说，他们需要管理家里的付费照顾者。核心管理任务是日常监测和与家庭照顾者建立关系；还介绍了培训有偿照顾者和协调与家庭护理机构的护理。为了在家里支持痴呆症患者的家庭照顾者，重要的是考虑他们的偏好和技能，以便有效地管理有偿照顾者。支持建立一支高质量的有偿护理队伍的努力，不仅有可能改善向痴呆症患者提供的护理，而且还有可能改善其家庭照顾者的经历。
As the locus of long-term care in the United States shifts from institutions to the community, paid caregivers (i.e., home health aides, personal care attendants) are providing more hands-on care to persons with dementia living at home. Yet, little is known about how family caregivers engage with paid caregivers. We conducted in-depth, semi-structured interviews (n = 15) with family caregivers, of persons living at home with severe dementia, and enriched our findings with data from a second cohort of family caregivers of persons with dementia (n = 9). Whether paid caregivers were hired privately or employed via a Medicaid-funded agency, family caregivers reported that they needed to manage paid caregivers in the home. Core management tasks were day-to-day monitoring and relationship building with family caregivers; training paid caregivers and coordinating care with homecare agencies was also described. In order to support family caregivers of individuals with dementia at home, it is important consider their preferences and skills in order to effectively manage paid caregivers. Support of efforts to build a high-quality paid caregiving workforce has the potential to improve not only care delivered to persons with dementia, but the experiences of their family caregivers.
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影响因子：
3.2
作者：
Hsieh, HF;Shannon, SE
通讯作者：
Shannon, SE
DOI：
10.1016/j.jalz.2017.10.006
发表时间：
2018-01
期刊：
Alzheimer's & dementia : the journal of the Alzheimer's Association
影响因子：
--
作者：
Samus QM;Black BS;Bovenkamp D;Buckley M;Callahan C;Davis K;Gitlin LN;Hodgson N;Johnston D;Kales HC;Karel M;Kenney JJ;Ling SM;Panchal M;Reuland M;Willink A;Lyketsos CG
通讯作者：
Lyketsos CG
影响因子：
3.2
作者：
Reckrey JM;Boerner K;Franzosa E;Bollens-Lund E;Ornstein KA
通讯作者：
Ornstein KA
影响因子：
2.4
作者：
Polacsek, Meg;Goh, Anita;Dow, Briony
通讯作者：
Dow, Briony
DOI：
10.1177/0733464820959559
发表时间：
2021-12
期刊：
Journal of applied gerontology : the official journal of the Southern Gerontological Society
影响因子：
--
作者：
Shaw AL;Riffin CA;Shalev A;Kaur H;Sterling MR
通讯作者：
Sterling MR