Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study
Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study
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DOI：
10.1186/s12913-016-1672-3
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发表时间：
2016-08-23
影响因子：
2.8
通讯作者：
Verhey, Frans
中科院分区：
文献类型：
--
作者：
Kerpershoek, Liselot;de Vugt, Marjolein;Verhey, Frans
背景资料：先前的研究结果表明，痴呆症患者及其非正式护理人员由于需求和服务使用之间的不匹配而难以获得和使用正式护理服务。这种不匹配导致总体不满，是对稀缺的财政护理资源的浪费。本文介绍了Actifcare（获得及时的正式护理）项目的背景和方法。这是一项欧洲研究，旨在为社区居住的痴呆症患者及其非正式护理人员及时获得正式护理提供最佳实践发展。有五个主要目标：1）探索与使用正式护理相关的诱发和促成因素，2）探索使用正式护理，需求和生活质量之间的关联，3）在欧洲国家比较这些，4）了解需求未得到满足的人使用正式护理服务的成本和后果，5）确定欧洲各国生活的主要成本和质量驱动因素及其与正规医疗服务的关系。方法：在8个欧洲国家进行的一项纵向队列研究中，约450名痴呆症患者和非正式护理人员将在1年内接受3次评估。（基线、6和12个月）。今年，我们将密切监测寻求正规护理的过程。将收集关于服务使用、生活质量和需求的数据。讨论：预计Actifcare的结果将揭示组织正式护理的最佳做法。有关获得护理服务的有利因素和诱发因素的知识，以及其成本和后果，可以将卫生系统研究的最新技术推进到痴呆症护理的途径中，以使痴呆症患者及其非正式护理人员受益。
Background: Previous findings indicate that people with dementia and their informal carers experience difficulties accessing and using formal care services due to a mismatch between needs and service use. This mismatch causes overall dissatisfaction and is a waste of the scarce financial care resources. This article presents the background and methods of the Actifcare (ACcess to Timely Formal Care) project. This is a European study aiming at best-practice development in finding timely access to formal care for community-dwelling people with dementia and their informal carers. There are five main objectives: 1) Explore predisposing and enabling factors associated with the use of formal care, 2) Explore the association between the use of formal care, needs and quality of life and 3) Compare these across European countries, 4) Understand the costs and consequences of formal care services utilization in people with unmet needs, 5) Determine the major costs and quality of life drivers and their relationship with formal care services across European countries.Methods: In a longitudinal cohort study conducted in eight European countries approximately 450 people with dementia and informal carers will be assessed three times in 1 year (baseline, 6 and 12 months). In this year we will closely monitor the process of finding access to formal care. Data on service use, quality of life and needs will be collected.Discussion: The results of Actifcare are expected to reveal best-practices in organizing formal care. Knowledge about enabling and predisposing factors regarding access to care services, as well as its costs and consequences, can advance the state of the art in health systems research into pathways to dementia care, in order to benefit people with dementia and their informal carers.